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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
Update: As expected my bloods haven't revealed anything. Unbelievably the Dr stated that they're the best results they've seen for awhile... I've got a call scheduled for this Friday to discuss potential options. Any idea where I should go from here?
Replies to "Update: As expected my bloods haven't revealed anything. Unbelievably the Dr stated that they're the best..."
@change25 have you had a paraneoplastic autoimmune antibody blood test done? I have had a lot of the same symptoms as you and everything was normal except for that panel. Its pretty rare but there is a place in England that knows about it. Am i correct in where you are? I'm sorry if not. Im juat learning how to navigate this site. The blood panel takes 28 days for the results to come back here from mayo clinic they made this panel I think and it's pretty crazy how it affects everything
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@change25, I'm sorry to hear the blood tests didn't reveal anything to help uncover what is going on and causing your symptoms. If it were me I would do a little preparation for your call and discussion with your doctor or care team. There are some really good tips here - https://patientrevolution.org/visit-tools