Hi @taonamission, chronic diarrhea can definitely take a toll on your entire body and having one test after another with no relief can leave you desperate for any answer.
It can be hard to track down a diagnosis when you are only having one symptom. Are you having any other symptoms that my help physicians hone in on what's going on? I read in one of your posts that you are spiking fevers, is that still going on?

I’ve had diarrhea for at least 10 years. It was episodic until 2 years ago when it became almost common. Someone suggested lactose intolerance kept a record of what I ate and found the link. I’ve been a huge milk drinker so this floored me. I now take a lactase pill before dairy of any kind and switched to lactose free products whenever I can find them. The key with me is to make sure I take a lactase tablet before I consume any sanity. I don’t know if there’s a medical test for this, if so, it would be worth looking into.

@taonamission Has your doctor ever suggested a Fodmap eating plan? In some cases, it can help with diarrhea. Here is some information about the eating plan by a registered dietician at Mayo Clinic,

Will you post and let me know your progress in finding answers to this debilitating problem?

Hello I'm a female, 25 years. I'm about 1m70 with a 65kg. I take Escitalopram 20 and deso 20 on a daily basis. Since years I had on and off stomach and bowel issues: cramps, diarrhea. This year I had chronic diarrhea since +/- january (sometimes up to 5 times a day). Mostly in the mornings. I got my blood and stool tested: low calprotectine, no weird bacteria, no parasites, no blood in stool. My doctor thinks it could be IBS but I'm not sure. He advised me to see a Gastroenterologist as well to make sure it's not allergies etc. Can you think of possible causes? Ofcourse stress might make it worse but even when I'm relaxed I get these problems so that can't be all I guess. Maybe worth mentioning: sometimes I have normal stool but it comes with brown water as well so I can't see anything in the toilet anymore. Low vit D and folic acid for years.Thank you.

I’m sorry you’re going through all this as I know how frustrating it can be. After decades of not knowing what was causing my diarrhea, and then believing dairy was the culprit, I’ve come to understand that’s it’s celiac disease. There is a doctor (Dr Joseph A. Murray) at Mayo who has studied celiac and related gluten problems. I bought his book, “Mayo Clinic Going Gluten-FREE“. After reading the book and absorbing info plus related information on Mayo’s site, I believe my decades of diarrhea was caused by gluten sensitivity. Read up on it. I stopped eating gluten and within 2 weeks I was a new person with literally no diarrhea. Btw, gluten intolerance can lead to dairy intolerance. See rthis Mayo site https://order.store.mayoclinic.com/books/gnweb28?utm_source=MC-DotOrg-PS&utm_medium=Link&utm_campaign=Gluten-Book&utm_content=GGF

Im seeing an integrative doctor at Mayo and a nutritionist there and with the supplements they put me on as well as the SCD I just started under them, the horrific gastro issues Ive dealt with since 3rd grade are getting under control. Ive been on the supplements for probably 3 months now (?) am super new in the SCD (specific carbohydrate diet) but already, there has been HUGE improvement. I have dealt with horrific gastro issues more of my life years than not and to have this getting under control is huge. Look up the SCD diet: http://www.breakingtheviciouscycle.info/
I have done the Weston A Price diet, the Paleo, vegetarian, vegan, and this one by far Im having the most success. The doctor I see is in the integrative department at Mayo. No one should have to live with the gastro issues your dealing with so fight for normalcy and health!! Dont give up!!! In the meantime, look up the SCD diet. It is a huge change and will require commitment and work on your part but for me, digestive pain was a great motivator.
Best to you..

The diaherra began 3 months ago. Everyday is a challenge. Does anyone know of stretches, etc. on moving my body.

@samz0429 - My sympathy! Were you diagnosed with microscopic colitis? If so- was any treatment prescribed?
In my case I had horrendous diarrhea for a month before diagnosis. I was then given Methotrexate injections weekly x 4.
It was very difficult for me to keep up with replacing lost fluid. This is definitely the biggest challenge. I probably should have had IV fluids on and off.
I was more comfortable lying down. If you lie on your left side it helps the colon to empty out.
Otherwise, I depended on Imodium or Lonotil.

anyone out there taken Lialda for ulcerative colitis ..any help?

I have been dealing with chronic diarrhea for months, most likely due to my liver and pancreatic duct dilation. This week I noticed my stools are now orange in color. Nothing I eat will digest properly, including a bland diet. My doctor has ordered more tests. I am exhausted from cleaning my bathroom. I keep a large container of vinegar in my vanity, and last night had 8 episodes of diarrhea. Forgive me for being so forthright.
I am due to see a liver specialist on March 7 2023 and will ask her if my ulcerative colitis has returned, which I understand can sometimes happen. I am feeling very anxious about my disease and subsequent weight loss, as well as other changes that have occurred in my life because I have lost 25 percent of my body weight. While I have gotten used to the "new me", I still cannot get over the fact that so many in my community continue to shun me as though I have the plague.
Friendships have also changed, and this week I received a letter from a very close college friend who flat out told me that she did not think that I understood that she had a demanding job and does not have the time to write letters to me. For many years we had this great letter writing back and forth, and it ended abruptly. I am trying to decide if her letter even warrants a response. Of course I know she works and is "living a full life" as she described to me. I too had a demanding job until I did not.
Someone recently mentioned to me that friendships change when one has a chronic illness, something I never gave any thought to until I became so sick and emaciated looking. I commented to my eye doctor's assistant yesterday that it seemed our world is so lacking in basic humanity, a characteristic I have always been proud of having.
I am dismayed at the medical treatment, or lack thereof, that I have received to date. I sent an online message to my PCP a few weeks ago that I was feeling hopeless and depressed as a result of my illness and asked if he thought increasing my antidepressant would be of help. He did not respond. I have to see him next week and will ask what the purpose of the online message system is if a patient cannot get a response from their doctor.
I understand that my condition(s) are complicated, after all it has taken 3 years to finally get an appointment with a liver specialist, even though I had been told one would never see me. I apologize if I sound like I am whining, perhaps I am simply frustrated at just how difficult it is to receive the appropriate medical treatment these days. I try to remain positive, active, engaged in creative activities and things of that nature. I am not curled up in a ball in some kind of catatonic state. All I want is help from my medical team, and it has become such a struggle to get the treatment I think I need. Yes, I have a friend who is a doctor and who has been very helpful by telling me what tests my PCP needs to order, and when I ask him to order such tests he does. but really, how crazy is that? This forum and my disease have enabled me to become more empowered, however I had no idea that getting the right treatment, if any, would be such a struggle. I have good coping skills, but in all honesty there are days when I really do feel like curling up in a ball, but I don't because I am afraid I would remain in that state. So instead I take walks, work on my artwork, bake bread for my neighbors, care for my 84 year old friend etc. I am constantly on the move. Right now, I just want to step off and rest.