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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)

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@grovercleveland

Hi its GroverCleveland again.
Hope you're are doing ok.
My bedroom is 65 degrees 24/7. I sleep quite well.
Rest of house is 67-71.
Loose cotton clothes. Beware, be cause some cotton has a coarse weave. Buy expensive cotton clothes. Big difference.
Shower water is below 89 degrees always. Hot water is my enemy. Also use steroid cream sparingly. Never get on your hands, else the skin will thin. No caluses will grow. You will cut easily.
Just printed out NJ monthly temperature chart.
Installed new attic fan. Old one burned out.
Took 20 minutes to install new motor. It was 10:30 am and temperature was 77 and rising.
I started sweating and hurried up. Came down and cold showered immediately.
Cold water put my back in order.
I do not get itches, but I get several pain spots. Nobody can see anything like blisters.
But they are my "Heat/Rough Clothing Alarm".
I immediately find a cold place and remove shirts.
If its 85 outside and I do not move much, my back seems happy.
Ride bike 1 hour before dark.
Infared from Sun is bad news.
Take 8 benadryl 3 hours before bed if Back is bad. Next morning Back is Happy.
PS listen to the Gardner

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Replies to "Hi its GroverCleveland again. Hope you're are doing ok. My bedroom is 65 degrees 24/7. I..."

Although my GD is in remission, like GroverCleveland I try to take precautions. My breakouts were the entire torso front and back initially, but with subsequent breakouts less on the chest and stomach and with the worst area the back. I have no doubt my skin has been altered because with GD there is a lack of collagen which connects our skin cells.
I try to get outside early and in before noon in the summer. M skin in that area feels different. I used to love to get messages, no more. Sweat on my back, even without the GD rash doesn't feel good. If I press hard on my back I can slightly feel the little tiny bumps which erupt into GD if I have stayed out too long in the heat and sweated. I immediately take a cool shower and promise myself I will take a day off out of the heat and let my skin calm. So far s good.
He's right about soft cottons. I can't tolerate pressure or scratchy clothing. Even 100% cotton knits feel softer then regular cotton fabric. I don't take Benadryl, however my doctor prescribed Hydroxyzine 25 mg to take in the evening. It is an antihistamine which can make people relax and I do feel it lowers my histamine level like Benadryl does.
The point about steroids is well taken. I did use steroids for over 15 years for hand eczema cause by an allergic form of eczema, ACD. I needed to get finger printed for a job after about 5 years of steroid periodic use and my fingerprints were not readable. I can't even see the with a magnifying glass. They are simply gone. Steroids do that because they thin the skin. For GD, which I got a decade later, the steroids, both oral and injected, didn't help at all. in truth no other treatment helped either until the cilantro detox.

Yes! no longer sitting in the sun,I also use sarna a great cream that works for itching,at walmart-