@dstraus @colleenyoung I’m so sorry! I completely missed the MDS reference. Of course, now I understand your frequency of transfusions.
I have a good friend with MDS and transfusions are a way of life. I asked her about Exjade. She’s had no side effects and it’s helped reduce her excess iron.

Have you contacted Blue Cross/Blue Shield to see if your medication is covered?
A quick glance at GoodRx says that 74% of Medicare Part D and Medicare Advantage plans cover this drug.
So depending on your supplemental insurance benefits, it might be covered for you.