Looking into hemochromatosis. My iron levels have been elevated for years and more recently the symptoms of this disease align with what I’m experiencing. Second pulmonologist I went to seems to think this is a possible diagnosis otherwise he is perplexed. He did acknowledge there are patients that they can never figure out why they have SOB or a cough though does not think my symptoms are related to anxiety, unlike every other doctor I’ve been to that says it’s “probably” that.

Sharing so those of you don’t give up hope and keep searching for answers and a solution.

As someone who has lived with anxiety for years, and fairly certain these symptoms are not anxiety related, it’s quite frustrating and depressing to have to go to 5 doctors and spend tons of time and money. Four months later and I finally found one that looks at the bigger picture, my whole health history, and listens to me. So I suppose that’s good and some progress.

Will update soon, in the meantime reminder to get a full blood work up.