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Organ Donation and Transplant: What is Your story?

Transplants | Last Active: 5 days ago | Replies (94)

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@colleenyoung

@marthagershun, thanks for the update on your book and congrats on its publication. That's quite the accomplishment. Your experience as a kidney donor is very welcome on Mayo Clinic Connect.

(Please note: Mayo Clinic Connect Terms of Use (https://connect.mayoclinic.org/terms-of-use/) and Community Guidelines ((https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/) state that commercial posts are not allowed on Connect.)

My interpretation is that your poured your heart and soul into this book and want to share it widely to help people, not for the primary goal of commercial gain. I hope and trust you'll share your experiences here in the online community to help encourage others to donate the gift of life as well.

Martha, can you share a bit more about working with Dr. Lantos? Why was it important to you to include the perspective of a physician and bioethicist? What ethical decisions did you face as you decided to donate?

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Replies to "@marthagershun, thanks for the update on your book and congrats on its publication. That's quite the..."

Thanks so much for the very thoughtful questions, Colleen. I wrote the book for two reasons: (1) to share how meaningful donating a kidney was and to encourage others to consider this opportunity - whether for a relative, friend, or stranger, and (2) to recommend policy changes that could make it easier for people to donate.

Dr. Lantos was particularly helpful in putting my personal story in the context of the medical, legal, and ethical history of living organ donation. As both a physician and a bioethicist he was able to use my story to show how current practices could be modified to ease the financial and psychosocial burdens on living donors, while maintaining both safety and efficacy. As a Harvard MBA, I wanted to talk about the unique position of living organ donors - we are BOTH patients AND part of the medical supply chain. Transplant Centers need to consider both roles in order to successfully recruit and retain these extraordinarily altruistic volunteers.