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Anyone have Laryngeal Sensory Neuropathy?
Ear, Nose & Throat (ENT) | Last Active: Nov 26 4:47pm | Replies (191)Comment receiving replies
Pleased to discover this site and Connect
I have larynx sensory neuropathy and here I have found others who suffer the same condition. The greatest frustrations I have experienced with the Australian medical system to date are a. that doctors don't listen to me and b. give me so little information. I also have Mac lung disease and the blogs/groups for this have been of enormous benefit to me over the past 4+ years.
Replies to "Pleased to discover this site and Connect I have larynx sensory neuropathy and here I have..."
@joanna48 Welcome to Mayo Clinic Connect, a place to give and get support.
We are happy you found Connect too.
You'll notice I moved your question to an existing discussion on larynx sensory neuropathy. I did this so you could connect with members like @avmcbellar @arlinebringhurst @tkubby @kimduncan1211 in a central location.
You may wish to scroll through the previous posts in search of information and connection.
May I ask how you are managing larynx sensory neuropathy and MAC lung disease?
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@joanna48 Welcome to Mayo Clinic Connect! I found that exactly what you pointed out, is a major reason this site is comfortable. While we each have our own journey with health issues and concerns, others are here to help us along! There is no "one-size-fits-all" and listening to others can give us hope. The website for Mayo Clinic itself offers so much information. https://www.mayoclinic.org
Here is the discussion group for lung health https://connect.mayoclinic.org/group/lung-conditions/
One for neuropathy https://connect.mayoclinic.org/group/neuropathy/
And one for ear/nose/throat https://connect.mayoclinic.org/group/ear-nose-throat-conditions/
Please feel free to wander through the different conversations and join in!
Ginger