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Fibromyalgia and adhesion & fascial issues
Fibromyalgia | Last Active: Oct 12 5:13pm | Replies (48)Comment receiving replies
@migizii I was diagnosed in 2016 (I think) and was surprised by it. I didn’t understand it then and still really don’t understand it very much now. I attended the 1 1/2 day class at Mayo; followed many of the class suggestions; but still don’t seem to know when I have pain or fatigue what is going on. I don’t communicate with their office (which maybe I should) but I have other pain disorders, so I am usually confused by it (unless it’s migraines-classic and chronic since childhood). One day at a time❤️
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@migizii i was diagnosed with fibromyalgia 30 years ago. I radically changed my diet and that got me out of bed. I don’t really have much pain anymore except for headaches and muscle aches if i do too much. I have learned to pace myself. I really feel like it is more ME/CFS now but doctors just look at me with blank stares. I have terrible sleep issues. I’m on nortrityline and estazolam at bedtime but sometimes it still takes me hours to fall asleep and after a sleep study they said I was not getting all the stages of restorative sleep but only sedated. GABA doesn’t help, I can’t take Cymbalta because of liver issues and no pain killers of any kind work on me. I use Nurtec now for migraines and am trying a Dr. Wahls diet to try to calm down my autoimmune issues and help my brain heal. I can’t take LDN either because of the sleep problems. Maybe because I can’t take morphine either. Does anyone else have any other sleep recommendations that have worked for you? I wish I had been told about a Mayo class. How did you get that info? They offered me no help.