Livedoid vasculopathy

Which medications did you try and what were the adverse reactions;

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Pentofloxin and aspirin. Pentofloxin made my shake horribly feeling like my heart was about to pound through my chest and aspirin caused thrush in my throat. Adalat, made me incredibly dizzy, felt like my brain was on a wash cycle spin. Laid me out on my bathroom floor with no control of even sitting.
Kenolog injections, caused my ulcers to cave in more. Methotrexate and folic acid, mouth sores , amplified anxiety and panic attacks. Gas pain and gerd with pain in chest. Nausea , forceful urination.

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No worries at all. Yes, they tried a few but I’d end up with adverse reactions. I’m so sensitive to meds that we are running out of options.

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Hey everyone. I've been suffering from livedoid vasculopathy for almost a decade now. Got my first attack/diagnosed when I was 13, and it's been on going ever since. At first it started out with painful ulcers lasting about 4-5 weeks, but as the years went on, the attacks became more frequent and more severe. Eventually, in 2019 I had the worst attack yet, pretty much needing crutches to walk for about 6 months, with blinding pain at times. After this attack was over, and I exhausted dozens of different 'experts' and doctors, I've tried to go a more natural path. I went to India for about 3 weeks, to a small center specializing in ayurvedic treatments. I didn't think anything of it, because how could it work if medical experts couldn't do anything about it? When I went, they knew how to treat it almost immediately. They made me get a uric acid test, something no doctor has ever ask before. when seeing my levels were over double than the normal amount, they recommended a diet tailored around getting that level to reduce. I've been on it for about 1.5 years now, and have not even felt a tingle of an attack on my feet so far. I get a uric acid test every 6-8 weeks to make sure my levels are consistent. I used to eat a ton of meat, which is the biggest reason my levels have been so high. I ate chicken pretty much daily. Now i've reduced it to about once a week and I thought i'd share my story with you guys. I know that this is not a proven method. I know that this will not work for everyone. But it worked for me. And knowing just how much pain this condition can bring physically, mentally and emotionally, I want to let you all know. If this can help even one person, I think it's worth it. I used to be on all the same medication that has been mentioned before as well, pentoxifylline, aspirin etc... but even that has reduce to 0. Please let me know if I can help in any other way

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Hey everyone. I've been suffering from livedoid vasculopathy for almost a decade now. Got my first attack/diagnosed when I was 13, and it's been on going ever since. At first it started out with painful ulcers lasting about 4-5 weeks, but as the years went on, the attacks became more frequent and more severe. Eventually, in 2019 I had the worst attack yet, pretty much needing crutches to walk for about 6 months, with blinding pain at times. After this attack was over, and I exhausted dozens of different 'experts' and doctors, I've tried to go a more natural path. I went to India for about 3 weeks, to a small center specializing in ayurvedic treatments. I didn't think anything of it, because how could it work if medical experts couldn't do anything about it? When I went, they knew how to treat it almost immediately. They made me get a uric acid test, something no doctor has ever ask before. when seeing my levels were over double than the normal amount, they recommended a diet tailored around getting that level to reduce. I've been on it for about 1.5 years now, and have not even felt a tingle of an attack on my feet so far. I get a uric acid test every 6-8 weeks to make sure my levels are consistent. I used to eat a ton of meat, which is the biggest reason my levels have been so high. I ate chicken pretty much daily. Now i've reduced it to about once a week and I thought i'd share my story with you guys. I know that this is not a proven method. I know that this will not work for everyone. But it worked for me. And knowing just how much pain this condition can bring physically, mentally and emotionally, I want to let you all know. If this can help even one person, I think it's worth it. I used to be on all the same medication that has been mentioned before as well, pentoxifylline, aspirin etc... but even that has reduce to 0. Please let me know if I can help in any other way

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Hello @cleverrover and welcome to Mayo Clinic Connect. Thank you for sharing this study with members who may find it beneficial to consider for themselves. Do you feel your father would be amendable to trying this diet?

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We did talk about it briefly. It would certainly be a huge and difficult lifestyle change. Since he's been dealing with this for many years and has tried pretty much every medical treatment we can find with little relief, he's open to trying it. I think 100% adherence would be difficult so we wonder if just some diet changes would show any improvement.

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