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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)Comment receiving replies
After 13 years with Small Fiber PN - I have found no encouraging answer to the overall discomfort of this wretched disease.
My pain gets worse at the end of the day & my only salvation is riding my road bike as often as possible. I can ride more than 20 miles a day but I can barely walk a mile. Any suggestions?
Replies to "After 13 years with Small Fiber PN - I have found no encouraging answer to the..."
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Hello @solobeee, Welcome to Mayo Clinic Connect. Unfortunately, small fiber PN is not a condition I would wish on my worst enemy so to speak. I'm glad you found Connect where you can learn what other members have shared helps them and hopefully find some relief for the pain. There are a couple of discussions you may wish to join to read the experience of other members including myself. I have small fiber PN among other conditions but I only have numbness without the pain. My neurologist said I'm in the 20% group of folks with PN who don't have the pain.
- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/405325/
- Living with Neuropathy – Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
- Illusive Diagnosis, Pain Increasing: https://connect.mayoclinic.org/discussion/illusive-diagnosis-pain-increasing/
What helps me is taking each day one step at a time and learning as much as I can by researching my condition and reading everything I can find on new research and treatments. Are you able to share a little about any treatments you've tried or thought about trying?