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@lisa2860

I'm a 56 year old female diagnosed with mai five years ago. Since then I have had chest pain that feels like a tightness and difficult breathing or more like I have to try to breathe. I also have terrible upper back pain. My doctor tells me I'm fine and said it has to be Gastro intestinal issues. I have had every test related to gastrointestinal issues and they are fine. I had a full cardio work up and I'm good there too. I swear my pain is from my lung issue. But I can't convince my doctor what I feel is not normal. I went on antibiotics for the mai for a year and a half and I feel the same, no better. Now I'm starting to feel worse. I'm 5 ' tall small framed and was 102 pounds when diagnosed. Now I am 109.
Does anyone out there have these symptoms?
Thanks, Lisa

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Replies to "I'm a 56 year old female diagnosed with mai five years ago. Since then I have..."

Where in the New York area? You man Manhattan/the Boroughs?

David1952....since you benefited from National Jewish 2016 NTM workshop videos....you might also like the ones from 2015....go to same web site bit dont fill in any date at the end.tdrell

Lisa2860 I believe NationalJewish in Denver has a sattelite at Mt Sinai in Manhattan.tdrell

Hello Lisa, I really agree with Kay .. I have had the CT scans and feel if it helps my doctor take better care of me .. make a better diagnosis of my progress .. then I will definitely do it! It might help you feel better if you see the below website.

This website explains it really well:
http://www.radiologyinfo.org/en/info.cfm?pg=safety-xray
Essentially a Ct scan is: 10 mSv and Naturally-occurring "background" radiation exposure : We are exposed to radiation from natural sources all the time. According to recent estimates, the average person in the U.S. receives an effective dose of about 3 mSv per year from naturally occurring radioactive materials and cosmic radiation from outer space. These natural "background" doses vary throughout the country.

Also, Mayo Clinic gave me a nasal spray that has really helped me with the post nasal drip. I didn't think I had it either .. but my doctor took a look at my throat .. said yes you do .. and I had to trust him! A bit of a hassle in that I have to get the nasal spray from Mayo pharmacy .. and it has to be refrigerated .. BUT it works so I do it!

I wonder .. kind of sounds like you do not have a lot of confidence in your current doctor? Personally I think that is SO important in the over all recovery of our disease. Wonder if you really do want to seek a second opinion? Elsewhere on our Forum I have detailed how I have gone about finding a new specialist for myself or my husband. If you are interested in doing that .. you might read back posts?
Hope the above helps just a little bit! Sending you a hug! Katherine

Hello Cowboy, interesting!

Just last night I read that exact thing! My husband pointed out the article "What's Really Causing That Annoying Cough?". The second item after Asthma .. was GERDS! It said: a Gerd related cough occurs when a surge of stomach acid reached the voice box. The irritation and inflammation that results from the acid lead to a persistent, raspy cough. You might also notice that your voice is more hoarse than it used to be.

Thought I'd quote that for anyone reading this .. I would never relate the cough to GERD! Too bad no doctor every diagnosed you sooner! Good thing you are persistent in your health! Katherine

Good information Kay .. thanks! Katherine

Don't worry about the radiation from a cat scan. The dose is minimal. I am a retired radiological and nuclear technologist with MAC.

Wondering about the pain in upper abdomen. It is a squeezing pain? I have episodes of that, that does not last long, but can be quite severe. Not related to MAC as I have had episodes for many years.
Elaine K

Indeed there is! Thanks, TD! Satellite website is nationaljewish.mountsinai.org