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@katemn

@apportee, @cila .. Cila, @cathyt .. Cathy, @coylemel333 .. Melody, @digmeme .. Linda, @flib .. Flib, @fransky, @heathert .. Heather, @hopeful33250 .. TeresaH, @janovr .. Jan, @justjanet .. Janet, @jillnc, @katiemknor .. Winnie, @kaystrand .. kay S., @kwilbur .. Kathryn, @laneyk .. Elaine, @liliane .. Liliane, @melissa23 .. Melissa, @mimi68 .. Mimi, @Paula_MAC2007 .. Paula, @rosemarya .. Rosemary, @sophie1019 .. Sophie, @suzieapples, @tdrell .. terri, @tutti .. Lisa

Hello All! I am back from my holiday .. refreshed and raring to go .. wanting to check in with each and every one of you to see just what is going on in your lives .. how you are doing .. how you are progressing .. how things are going.

Please check in so I don’t worry about you .. just a short note to let me know your current status.

I want to thank each of you that jumped in to watch for new people on our Forum while I was gone .. so kind of you. It is so important that we are there for each other on this our shared journey .. you do it well .. again .. thank you!

I am well .. did just great on my trip other than having to explain over and over again that my coughing was NOT contagious. Frankly on my next visit with Dr. Aksamit I am going to request a simple statement that my 3 lung diseases are NOT contagious whether I am coughing or NOT coughing! For whatever reason I tend to cough a LOT in enclosed spaces. Be it in a restaurant .. taxi .. bus .. theatre .. airplane .. whatever. I found a little device: Air Supply Mini-Mate Personal Ionic Air Purifier

https://smile.amazon.com/Supply-Mini-Mate-Personal-Ionic-Purifier--Black/dp/B000B6CMZ4/ref=sr_1_1?ie=UTF8&qid=1474246233&sr=8-1&keywords=mini+mate

held up to my nose helps greatly .. for whatever reason! It is supposed to clean the air. I don’t really care how/why it helps me not cough .. I just know it does .. so I pull it out in enclosed spaces and it helps every time! So that is me .. let me know about you! Sending hugs to all! Katherine

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Replies to "@apportee, @cila .. Cila, @cathyt .. Cathy, @coylemel333 .. Melody, @digmeme .. Linda, @flib .. Flib,..."

Fran, I REALLY am glad you are seeing you GP tomorrow .. I was reluctant to say too much but I was really concerned about your heart symptoms .. just NOTHING to fool around with. May turn out to be nothing .. but again .. be pro active! MUCH better safe than sorry. I don't know a lot about it .. but I've read that women's heart issues are very different than mens .. .that we need to be more aware because our symptoms are not similar. Really glad you are going tomorrow. Let us know how it goes! Hugs! Katherine

I felt so much stronger this weekend after being given antibiotics for a<br>cold I caught at school but am a little concerned. I had blood in my<br>sputum tonight. Just this once. I have a cscan scheduled for September<br>26 and will see my pulmonologist Oct. 7. Enjoying my job - teaching -<br>just trying not to do anything else and rest on weekends. I really need<br>to work to keep my house which adds stress. But I am inspired by how well<br>everyone sounds as they go through treatment. It is just wait and see for<br>me now.<br><br>

Hello Kathryn, I can only speak for myself .. but I fairly frequently have blood in my sputum .. when mentioning it to Dr. Aksamit he has not seemed to be too concerned by the quantities I have mentioned .. even when it has been blood clots perhaps 1/4" in diameter. But that is only me. I have made it a point to keep a "medical calendar" (getting a new annual Hallmark calendar at the beginning of each year) and making a note of date/time/incident of any new symptom or medical issue I have. That way I have a written record of when anything started .. how many times .. how much etc. So in your case I would just note the date/time/blood in your sputum .. and approximate quantity .. perhaps how much you have been coughing etc. That way if it develops into a pattern you have a record of it.

I assume you have had your flu shot so I guess about all you can do is what you are doing .. resting on week ends and trying to take the best care of yourself possible. Just be kind to yourself and try not to worry too much .. worry just adds to our stress .. plus we really can't do a darn thing about most of what we worry about! I know this is a really tough time for you .. just know that we are all here for you and sending you lots of positive energy and hugs! Katherine

Welcome! i'm glad your back and safe. I have not feeling well lately, its heavy pressure on my chest, hard time breading and my back is hurting. I think b/c I can't sleep. Also my acid reflux is out of control. I took everything OTC meds and ambient still not working. I'm so tired for not sleeping. Everything in my body is mess up. I got panic attack, shaking and nervous, don't know what to do. Phone my PCP Dr. check me out and gave me anxiety meds. told to come back 4 weeks. Sleep good for 2 nights now. Hopefully I can make up w/my sleep and get rest. Cila.

Cila - sorry to hear about everything.  Have you seen an upper gastrointestinal specialist about your acid reflux?  That's the type if Dr I see to maintain mine and have been very satisfied with him.  Over the past 6 years I've seen him a handful of times to keep meds updated  (have changed 3 times because of ins stop paying for them), and I've had 3 endscopy's done because I was complaining of swallowing isses first two times and 3rd was at request of another Dr because so much of my medical history has changed in last 6 months they wanted to make sure they weren't missing anything.  He also suggested elevating the head if the bed 6 inches.  So my husband cut 2x4 to 6 inches and put them under the headboard posts.. it helped my husband too.  My suggestion, if you haven't already gone would be to go see an upper GI Dr for the reflux.  Hope you find relief soon. Jill<br><br><br>

Thanks Katherine! You know I hadn't read that it was contagious ANYWHERE until her notes so I just had to check in with you all to see if I was missing something. If Dr. Aksamit has told you it's not that's good enough for me. No need to check with him again. I just have to disregard that bit of advice. It's late so I'll fill you in tomorrow on what she had for a plan for me. I feel better now. 🙂 Janet

Paula, thanks. I hadn't read anything before about it being contagious under any circumstances so that really threw me. I'm going to go with what I've heard/read/am hearing now. Which is that it isn't contagious - period. Janet

@katemn Thanks for your good thoughts and suggestions!

Take care - I too have panic attacks and they are very real. I have been on medication for five years. These can be triggered by caffeine and I always watch a short comedy before going to bed. Also do nothing but relaxation after work. I know this is hard, but I think it can also be temporary. It comes and goes - but I would try to get a low dosage of whatever your doctor suggests. Of course, no alcohol with that.

Thank you for the good suggestion / record keeping. I did see on one site that this intermittent blood in my sputum is not unusual. I have also had at the same time one case of night sweats which I never have had in my life. So the fact that they occurred together is noteworthy. So glad to hear from you.