More than happy to join ostomy. As I understand it the greatest threat was cancer of the colon because of colon exposure to nitrites and nitrites in urine . Having had a colostomy, uro-conduit,and hartmans pouch now I still have areas of high risk for cancer where they used native colon: those areas are uro-conduit where native colon used for conduit part, and hartmans pouch with rectum area left. Dr. Frank has been doing loopogram to watch suspicious are in conduit and next year will scope that area (yikes). Dr. Connor does smoke flex every year for H pouch ( painful) and colonoscopy every other year.. I remain positive about my chance to be cancer free because my Mayo doctors are so vigilant and because I’m getting further away from ureterosigmoidomy.
If I sound knowledgeable it’s because I am a CNS, my doctors educate, and I insist on staying awake enough to watch colonoscopy and ask questions and get answers. AND you would be amazed at how many non-Mayo doctors I have had to explain my condition to because they are not teaching it in medical school. Also, Dr. Loftus. Connor always draws pictures of what he’s talking about. I copy them and take to local doctors.