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Joined: Oct 06, 2011


Posted by @engelee, Oct 6, 2011

born with bladder exposed on abdomen and solution was to take ureters and internally anastamose them to the sigmoid. There are no portals outside my bodt. This procedure no longer done–much updating) I struggle with metabolic issues, and potential for Cancer which I think may be less because I have had this 59 years and Mayo’s has not seen anybody who has had this set-up for 48 years I go every year to Mayo—I have developed alotof weakness in my thighs and legs generally and alot of fatigue



Posts: 18
Joined: Mar 17, 2012
Posted by @hoagie6, Mar 19, 2012

my daughter was born w/ bladder exstrophy. She now has an augmented bladder and caths thru an abdominal stoma. she is 13 now. I hope you feel better!!

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