ureterosigmoidostomy

Posted by engelee @engelee, Oct 6, 2011

born with bladder exposed on abdomen and solution was to take ureters and internally anastamose them to the sigmoid. There are no portals outside my bodt. This procedure no longer done--much updating) I struggle with metabolic issues, and potential for Cancer which I think may be less because I have had this 59 years and Mayo's has not seen anybody who has had this set-up for 48 years I go every year to Mayo---I have developed alotof weakness in my thighs and legs generally and alot of fatigue

Interested in more discussions like this? Go to the Ostomy Support Group.

engelee | @engelee | Nov 26, 2019

In reply to @colleenyoung "@engelee, welcome back the Mayo Clinic Connect. You have so much experience and knowledge to share...." + (show)

More than happy to join ostomy. As I understand it the greatest threat was cancer of the colon because of colon exposure to nitrites and nitrites in urine . Having had a colostomy, uro-conduit,and hartmans pouch now I still have areas of high risk for cancer where they used native colon: those areas are uro-conduit where native colon used for conduit part, and hartmans pouch with rectum area left. Dr. Frank has been doing loopogram to watch suspicious are in conduit and next year will scope that area (yikes). Dr. Connor does smoke flex every year for H pouch ( painful) and colonoscopy every other year.. I remain positive about my chance to be cancer free because my Mayo doctors are so vigilant and because I’m getting further away from ureterosigmoidomy.
If I sound knowledgeable it’s because I am a CNS, my doctors educate, and I insist on staying awake enough to watch colonoscopy and ask questions and get answers. AND you would be amazed at how many non-Mayo doctors I have had to explain my condition to because they are not teaching it in medical school. Also, Dr. Loftus. Connor always draws pictures of what he’s talking about. I copy them and take to local doctors.

engelee | @engelee | Nov 26, 2019

In reply to @engelee "More than happy to join ostomy. As I understand it the greatest threat was cancer of..." + (show)

I have a # of interests: the first is My Catholicism, see ostomies as gift from God, I volunteer on Ostomy floor at local community hospital
and I belong to Endacott Society for retired KU faculty, I support in many ways new African students to KU (my house is hangout}, love my 2 little dogs, quilt, needlepoint. therapy x2 every week for support with my life, book club, antique guild with UWC.