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My tremor sometimes rouses the attention of people wherever I am, and some people find it necessary to make a comment, like "are you alright?" or "do you need help bringing the groceries to the car?" I resent these comments, considering I am an extremely physically fit individual who can hike 10 miles, lift heavy weights and practice difficult yoga, and the comments are made by people who are probably not as fit as I am. I regard this as an intrusion and wish it would not happen. What should my response be? I sometimes say "why are you asking?" but they never come out with "because you are shaking", or I say "I'm fine, and how are you?" although I really would like to say "that's not none of your business" or something to that effect. I'm sure I am not alone!
Replies to "My tremor sometimes rouses the attention of people wherever I am, and some people find it..."
I guess I'm different, because I want everybody to know what I have. I have been with NSTA and Dystonia, Inc., and it was our duty to inform everyone about ST, spasmodic torticollis - the works. If I saw somebody with a shaky head at the store, I would ask them if they had ST, Dystonia, or tremors. Some would be grateful because no doctor could help them and some were in denial and didn't want to talk about it. I guess it's part of being a RN and wanting to help people with this monster. I'm a fighter! I ain't gonna let this monster get me down.
@ingdom I understand your feelings. I actually just say that I have cervical dystonia and am learning to deal with it. I appreciate your offer, but I’m fine with functioning independently.
Hang in there. It is upsetting.
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Do you know why you're having tremors-meds, hereditary, and if you have seizures they can too. Hand and finger exercises can help as well