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question about Menieres Disease

Ear, Nose & Throat (ENT) | Last Active: Jan 3, 2012 | Replies (31)

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@robertkm49

I wish to contribute my experience regarding this post -- in case it is a help to others. I have scanned the comments and, generally speaking, can say I have experienced all the symptoms (and then some -- tinnitus and vertigo can be so relentless that you can not even sleep -- much less get out of bed and have any kind of existence), tried all the meds, had all the "tests" (including spinal taps) and seen numerous specialists including UCLA Medical School & world famous House Ear Clinic in LA. Mine was/is a life changing experience. I am now 62 and had to drop out of college because I woke up one morning and had to crawl out of bed -- vertigo, tinnitus, vomiting and had 100% hearing loss in my right ear. This went on for months/years. There is a reason why Van Gogh cut off his ear and why "Starry Night" was painted the way it was. Second only to pain, ear problems file most of the top ten disabling symptoms. Briefly and loosely stated, the best label current western "medicine" have given me is that of Menieres. I have gotten fairly good about evaluating ENT types and I am not very impressed. Roughly speaking the 80/20 rule applies to them (and doctors in general). I hope everyone can persevere and find a good doctor who falls in the 20% category -- someone who truly puts the patient first and is good at their trade. After several years and many ENTs, specialists, "tests & procedures", I stumbled upon an ENT type who said try this ... it will help. It was Valium at 5mg three times per day. Within 4 to 6 hours my vertigo completely stopped -- after many years. For me this was like a miracle: I could now drive a care and earn a living. It is important to be sure you are put on an effective dose -- there is no room for wimpy "doctors". As I look back, over the years, I often wonder: could all those "doctors" be so dumb -- why wasn't this offered up early in my medical experience -- even if only as a diagnostic tool.
For those who may be stuck with on-gong balance problems (because of ear damage) the body does some good adaptation but it takes time (if you are fortunate enough to find good help, you might be able to accelerate the process. The eyes, legs (muscle groups) and feet all help compensate for the loss of the ear(s). Since I did not trust my ability to drive safely (vertigo could get worse with little or no warning), I did a lot of walking and trying to ride a bicycle. Bicycle riding was probably a great balance exercise for training the eyes to carry on were the ear stopped. The point is that one can regain 80 to 90% of your balance back. It isn't perfect. For me, if I get caught in a really dark room (without a focal light source), I stop moving and do a controlled crash to the ground -- I have lost any sort of balance control. Now, when that happens, I just think it is funny and crawl my way to achieve some sort of focal reference points.
I know things can be much worse and I am always amazed at how the body works at healing -- or should I say balance --itself. Regrettably, there is more to this tale. I hope that my narrative is a help. Never give up.

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Replies to "I wish to contribute my experience regarding this post -- in case it is a help..."

Please check out these two websites - there are many others as well. I have done enough research to believe my mercury fillings is the cause of my Meneres. You have to go to Holistic Dentist to have the fillings removed safely to keep from being exposed to addition mercury, and it is expensive. You also need to go to a good natural doctor (I found one that has a college degree in natural health), to have the mercury detoxed from your body. It will not be a cheap road, but in my case will be around $2,000 to have all of my fillings removed safely and then to be detoxed. To me it will be worth every penny to get rid of the Meneres. I will let you all know the results, when I have completed the process. I get the right side done on Dec. 7th and the left side on Dec. 14th, but I probably need a little time to detox as well.

I found most dentist will remove your mercury fillings, but do not use the correct safety messures to keep you from being exposed to even more mercury. The natural doctor I use is still working with a patient to try to remove all of the mercury after a regular dentist removed his fillings. He is very sick from it. Some people are more sensitive to mercury than others.

I would check into this is you have mercury feelings yourself. Let me know what your results are as well.


Thanks!
Brenda


http://www.thebostonchannel.com/r/26555853/detail.html

http://www.toxicteeth.org/PublicfloodsFDAonmercuryfillingstoxicity111406.aspx

Please check out these two websites - there are many others as well. I have done enough research to believe my mercury fillings is the cause of my Meneres. You have to go to Holistic Dentist to have the fillings removed safely to keep from being exposed to addition mercury, and it is expensive. You also need to go to a good natural doctor (I found one that has a college degree in natural health), to have the mercury detoxed from your body. It will not be a cheap road, but in my case will be around $2,000 to have all of my fillings removed safely and then to be detoxed. To me it will be worth every penny to get rid of the Meneres. I will let you all know the results, when I have completed the process. I get the right side done on Dec. 7th and the left side on Dec. 14th, but I probably need a little time to detox as well.

I found most dentist will remove your mercury fillings, but do not use the correct safety messures to keep you from being exposed to even more mercury. The natural doctor I use is still working with a patient to try to remove all of the mercury after a regular dentist removed his fillings. He is very sick from it. Some people are more sensitive to mercury than others.

I would check into this is you have mercury feelings yourself. Let me know what your results are as well.


Thanks!
Brenda


http://www.thebostonchannel.com/r/26555853/detail.html

http://www.toxicteeth.org/PublicfloodsFDAonmercuryfillingstoxicity111406.aspx

Please check out these two websites - there are many others as well. I have done enough research to believe my mercury fillings is the cause of my Meneres. You have to go to Holistic Dentist to have the fillings removed safely to keep from being exposed to addition mercury, and it is expensive. You also need to go to a good natural doctor (I found one that has a college degree in natural health), to have the mercury detoxed from your body. It will not be a cheap road, but in my case will be around $2,000 to have all of my fillings removed safely and then to be detoxed. To me it will be worth every penny to get rid of the Meneres. I will let you all know the results, when I have completed the process. I get the right side done on Dec. 7th and the left side on Dec. 14th, but I probably need a little time to detox as well.

I found most dentist will remove your mercury fillings, but do not use the correct safety messures to keep you from being exposed to even more mercury. The natural doctor I use is still working with a patient to try to remove all of the mercury after a regular dentist removed his fillings. He is very sick from it. Some people are more sensitive to mercury than others.

I would check into this is you have mercury feelings yourself. Let me know what your results are as well.


Thanks!
Brenda


http://www.thebostonchannel.com/r/26555853/detail.html

http://www.toxicteeth.org/PublicfloodsFDAonmercuryfillingstoxicity111406.aspx

Sorry I sent you the reply so many times. I was have trouble with my computer and it did not appear to be sending.

Please email me at brenda.styers@yahoo.com

Hi Robert - Who did you see at House? I have had Meniere's for 15 years, hearing in eft ear shot, no vertigo for 20 years until the past month- about 3 episodes a week. I thought valium was additive - are you able to function on 5 mg 3day? I am 73, still working as a research consultant and need to stp spinning, staggering, and
suffering from foggy brain. Did you go through the allergy testing at House? And - did you have good experience with UCLA ENT? I am in the UCLA system, thought House might be better. Thanks in advance,'
Cindy

Sorry that you are experiencing vertigo. Hopefully, it will not get worse. In my case, it was 24/7 -- for months. Coupled with sever tinnitus, I found it hard to even sleep not to mention having any kind of life. Consequently, in my case, any additive nature of Valium was/is a none issue. I get the feeling that you wonder if taking 5 mg 3 times a day would have knocked me off my feet. That is probably a reasonable concern as the younger doctors at UCLA_ENT looked at me in disbelief that I could even walk -- taking that amount. For me, Valium (at that dose) was a real life saver -- perhaps saying that it was miraculous would not be going too far. I was so "conditioned" to living with vertigo that I took many months of being totally vertigo free (thanks to Valium) before I could stop living in fear that an episode would suddenly occur (when driving a car, etc). Unrelenting vertigo can be a real show stopper. I had/have absolutely zero problems functioning at that dose.
Although I have often heard that going to a teaching hospital can be very advantageous, I found the docs at House to more realistic/practical in their diagnosis and treatment. I saw several at both. My preference would be House. I was always searching for a medical specialist who also had Meniere's but no such luck. It is interesting that you mentioned allergy testing. Of all the tests, procedures, pills, diets, etc -- allergy tests were never run on me. I sincerely hope that you can get the proper help to bring your vertigo under control. Someone who sticks with you and actually "pulls out all the stops" to conquer the vertigo.

I would like to share my story about amalgam fillings with you.

I started losing my hearing about 6 years ago and starting getting vertigo about 4 or 5 years. Starting in mid July of 2011, I was unable to move my head 2 inches without throwing up constantly and could not function without Dramamine 2, both day and night. Before I learned how to control the vertigo with Dramamine 2, I could not do anything. I just laid in bed and could not move. Even to get up to go to the restroom meant throwing up at least 10 times one way both to and from the restroom. I was diagnosed with Meniere’s. Someone told me about Meniere’s being associated with amalgam fillings, which have mercury in them. I started to research this and found out that a lot of my health issues were symptoms of mercury poisoning. (I will list these symptoms below.) I went to a Doctor of Natural Health, one with a degree in the field, and found out my mercury levels were extremely high.

I made an appointment with a holistic dentist, to avoid any additional mercury exposure. I had my right side amalgam fillings removed first, since it was effecting my right ear. I was so afraid to stop taking the Dramamine 2 for fear of not being able to function again. So I stopped all Dramamine 2 in the day time and did a couple of nights of a half a dose and one night of a fourth of a dose. In less than one week, I had totally stopped taking the Dramamine 2 and have not had vertigo since!! I have never been so grateful. (I am in the process of detoxing for the mercury, which you most do to remove the mercury that is in your system.)

I had my amalgam fillings approximately 25 years before my meniere’s hit me. Here are the other health issues I had, but did not relate them to my fillings until after I started researching mercury:

Irritability
Restlessness
Angered easily
Indecision
Inability to concentrate
Insomnia
Numbness in limbs for no reason
Muscle weakness
My hands had just started to tremor on occasion
Coordination got worse
Bleeding gums
Loosening of teeth
Excessive salivation (especially noticeable at night)
Foul breath
Sometimes a metallic taste in mouth, but not always
Vertigo - terrible case of
Ringing in ears, along with other noises
Lost most hearing of hearing in right ear
Candida
Chronic constipation, then sometimes diarrhea
Abnormal heart rhythm and EKG
Repeated chronic sinus infections
Tumor in jaw close to one of my large fillings - believe to be cancerous (now rid of)
Joint pain, that I thought was fibromyalgia
Chronic sinus infections and terrible allergies (although I grew up on a farm and did not have allergy problems)
Severe dermatitis on right hand developed shortly after receiving my fillings. (I am curious to see if this goes away after I detox.)
Subnormal body temperature
Excessive perspiration
Unexplained pain
Chronic fatigue

There are many other symptoms. If you have any silver fillings in your mouth, look up mercury poisoning on the internet. It first effects the brain and nervous system, which may be the cause of the tingling. I am not saying that is the problem, but it is at least worth checking into. If you have the amalgam fillings and you have them removed, please go to a holistic dentist to avoid further exposure to the mercury and you will need to detox for mercury. Mercury does not show up in your blood test after several minutes of the exposure. Your body stores it in you cells to get it out of your blood. So I would not rely on a doctor testing your blood to see if it is high. A urine test is more accurate, but you have to take something to pull it out of your cells so it will show up in your urine. I know your symptoms can be caused by other things as well. But I have gained my life back and want to get the word out to help others. Please let me know, what you find out. Thanks and I wish you the best! I know it about ruined my life.