question about Menieres Disease

Posted by STYERS @styers, Aug 23, 2011

I have dizziness that last for days with vomiting, hearing loss in one ear and ringing in that ear. My doctor has diagnoised me with menears and run a MRI. The MRI show everything is normal with my ear. I don’t see how everything can be normal when half of my hearing is gone in that ear, it has constant ringing and I can not even move my head some days without vomiting. Has anyone had these systems and the doctor not be able to find out what is wrong?

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I’ve had two MRI’s in the last eight months, along with many other tests trying to figure out the cause of my dizziness/balance problem, but like you, they come back as normal. You would think an MRI would show something wrong with the inner ear when it comes to this issue since the inner ear controls these functions. So far taking Ativan takes the edge off the dizziness for a while since it suppresses the vestibular system.
I’m trying to get into Mayo Clinic to have this figured out, but so far they have been reviewing the tests I’ve already had this last year, and haven’t called back with an appointment date. Good luck to you, being dizzy is terrible.

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Hi,

I have dizziness issues and tinitis and like Chester, I take ativan to take the edge off. But it’s only a temporary relief. It doesn’t touch the headache, but relief from the diziness is welcome. It also helps with nausea.

My symptoms are caused by a Pineal Cyst, although much of the literature I’ve read says that PC’s don’t cause symptoms. Supposedly theyr are benign and are just “There”. I say that the area in our heads is prime real estate and anything extra in there can cause symptoms.

Incidently, I had an MRI back in march for my ears. They caught just a shadow of the cyst by chance. Another more focused MRI in June found a very pronounced cyst.

Jeep

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Hi, I was diagnosed with Menieres Disease 11 years ago and my left ear has been ringing since then. I have not had one second of a day where my ear did not ring. I do have a big hearing loss in that ear also. I know what you mean about the dizziness, I had that for several years (its vertigo). There is nothing you can do about the ringing but the migraines, vomiting, and diarrhea can be managed by trying to avoid salt. There is salt in everything you eat so try (and it is so hard), try to have no more than 1,000 mg salt per day.

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@chester

I’ve had two MRI’s in the last eight months, along with many other tests trying to figure out the cause of my dizziness/balance problem, but like you, they come back as normal. You would think an MRI would show something wrong with the inner ear when it comes to this issue since the inner ear controls these functions. So far taking Ativan takes the edge off the dizziness for a while since it suppresses the vestibular system.
I’m trying to get into Mayo Clinic to have this figured out, but so far they have been reviewing the tests I’ve already had this last year, and haven’t called back with an appointment date. Good luck to you, being dizzy is terrible.

Jump to this post

Thanks for responding. I have had the dizziness constantly unless I take Dramamine 2. I can not move my head 2 inch without vomiting horribly unless I do take the Dramamine. I have an appointment with two different specialist, but it takes a while to get in. I have gone to a naturalpathic doctor that has a college degree in natural medicine. He got me in right away. He does muscle testing and it is very acuate. (He cleared my mom of cancer.) He tested and said that the fluid in my ear is not draining properly and the my estationary tube had calcium deposits that was part of the drainage problem and that the fluid in my ear is not a healthy fluid. He gave me a couple of things, but told me not to stop taking the Dramamine for a least a week to give the problem time to correct. I think I will wait a little longer than that, because as you said, being dizzy is terrible. I have to lay still, no TV and reading. I just lay there or I’m vomiting horribly. I wish you the best. I will let you know how it turns out on this end and hope you will do the same.

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@chester

I’ve had two MRI’s in the last eight months, along with many other tests trying to figure out the cause of my dizziness/balance problem, but like you, they come back as normal. You would think an MRI would show something wrong with the inner ear when it comes to this issue since the inner ear controls these functions. So far taking Ativan takes the edge off the dizziness for a while since it suppresses the vestibular system.
I’m trying to get into Mayo Clinic to have this figured out, but so far they have been reviewing the tests I’ve already had this last year, and haven’t called back with an appointment date. Good luck to you, being dizzy is terrible.

Jump to this post

I

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@bambi

Hi, I was diagnosed with Menieres Disease 11 years ago and my left ear has been ringing since then. I have not had one second of a day where my ear did not ring. I do have a big hearing loss in that ear also. I know what you mean about the dizziness, I had that for several years (its vertigo). There is nothing you can do about the ringing but the migraines, vomiting, and diarrhea can be managed by trying to avoid salt. There is salt in everything you eat so try (and it is so hard), try to have no more than 1,000 mg salt per day.

Jump to this post

Thanks for the reply. The MRI did not show anything on mine. I have an appointment with two different specialist, but it takes a while to get in. I have gone to a naturalpathic doctor that has a college degree in natural medicine. He got me in right away. He does muscle testing and it is very acuate. (He cleared my mom of cancer.) He tested and said that the fluid in my ear is not draining properly and the my estationary tube had calcium deposits that was part of the drainage problem and that the fluid in my ear is not a healthy fluid. He gave me a couple of things, but told me not to stop taking the Dramamine for a least a week to give the problem time to correct. I think I will wait a little longer than that because being dizzy, not being able to move and vomitting is terrible.

REPLY
@jeep

Hi,

I have dizziness issues and tinitis and like Chester, I take ativan to take the edge off. But it’s only a temporary relief. It doesn’t touch the headache, but relief from the diziness is welcome. It also helps with nausea.

My symptoms are caused by a Pineal Cyst, although much of the literature I’ve read says that PC’s don’t cause symptoms. Supposedly theyr are benign and are just “There”. I say that the area in our heads is prime real estate and anything extra in there can cause symptoms.

Incidently, I had an MRI back in march for my ears. They caught just a shadow of the cyst by chance. Another more focused MRI in June found a very pronounced cyst.

Jeep

Jump to this post

Thanks for the reply. The MRI did not show anything on mine. I have an appointment with two different specialist, but it takes a while to get in. I have gone to a naturalpathic doctor that has a college degree in natural medicine. He got me in right away. He does muscle testing and it is very acuate. (He cleared my mom of cancer.) He tested and said that the fluid in my ear is not draining properly and the my estationary tube had calcium deposits that was part of the drainage problem and that the fluid in my ear is not a healthy fluid. He gave me a couple of things, but told me not to stop taking the Dramamine for a least a week to give the problem time to correct. I think I will wait a little longer than that because being dizzy, not being able to move and vomitting is terrible.

REPLY
@bambi

Hi, I was diagnosed with Menieres Disease 11 years ago and my left ear has been ringing since then. I have not had one second of a day where my ear did not ring. I do have a big hearing loss in that ear also. I know what you mean about the dizziness, I had that for several years (its vertigo). There is nothing you can do about the ringing but the migraines, vomiting, and diarrhea can be managed by trying to avoid salt. There is salt in everything you eat so try (and it is so hard), try to have no more than 1,000 mg salt per day.

Jump to this post

I sorry I answered to the wrong reply. I have the ring also, it has been 4 years. But the veritgo use to come and go away, it has now stayed for 2 months. I am on Dramamine 2 everyday to function. As I said earlier, I have gone to a Naturalpathic doctor and I hope it helps. The specialist I am going to see, wants to do another motion test and I have to be off of Dramamine for 2 days before the test. I what the Natualpathic doctor gave me does not work by then, I don’t even know how I will get there. I wish you the best!

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I HAD A CT SCAN DONE TODAY ON MY LEFT EAR, I WOKE UP 3 NIGHTS AGO IN THE MORNING AND REALIZED MY EAR WENT DEAF AND I COULD NOT HEAR OUT OF IT….AT ALL!!! IT WENT COMPLETELY DEAF AND NOW I AM DIZZY AND THE ROOM IS SPINNING AROUND NOT AS MUCH NOW….BUT WHEN I LAY DOWN IT TAKES BOUT 4 MINS TO SETTLE DOWN THEN WHEN IT DOES I CANNOT MOVE…..I AM SCARED I USED TO LIKE THIS DIZZY FEELING WHEN I WAS A KID, BUT NOT NOW….LOL, THE DR HAS PUT ME ON HYDROXYZINE FOR THE DIZZINESS BUT NOW I HAVE BALANCE PROBLEMS…..HOW LONG IS THIS GUNNA LAST?…..I HAVE 3 BABIES THAT NEED ME…I JUST CRY…. 🙁

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@denisepoahway

I HAD A CT SCAN DONE TODAY ON MY LEFT EAR, I WOKE UP 3 NIGHTS AGO IN THE MORNING AND REALIZED MY EAR WENT DEAF AND I COULD NOT HEAR OUT OF IT….AT ALL!!! IT WENT COMPLETELY DEAF AND NOW I AM DIZZY AND THE ROOM IS SPINNING AROUND NOT AS MUCH NOW….BUT WHEN I LAY DOWN IT TAKES BOUT 4 MINS TO SETTLE DOWN THEN WHEN IT DOES I CANNOT MOVE…..I AM SCARED I USED TO LIKE THIS DIZZY FEELING WHEN I WAS A KID, BUT NOT NOW….LOL, THE DR HAS PUT ME ON HYDROXYZINE FOR THE DIZZINESS BUT NOW I HAVE BALANCE PROBLEMS…..HOW LONG IS THIS GUNNA LAST?…..I HAVE 3 BABIES THAT NEED ME…I JUST CRY…. 🙁

Jump to this post

Thanks for replying. I have an appointment with two different specialist and am seeing a naturalpathic doctor – a N.D. I will let you know what I find out. If you are able to receive any help, please let me know what has caused your dizziness. Thanks!

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My MRI was normal but was diagnosed with Menieres disease. I was put on prednisone for 2 weeks, Valium when the spinning starts, a daily diuretic and a low salt diet. Was doing much better until I went on a trip to Europe and now everything is back. Tried so hard to eat low sodium but it is difficult when you are out. We also had a very hectic schedule, time change, etc. That I think retriggered it. Am holding off going back to ENT to see if things will settle down. Hearing is crappy in left ear and it’s like an alarm clock is going off in my ear at all times.

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I wish to contribute my experience regarding this post — in case it is a help to others. I have scanned the comments and, generally speaking, can say I have experienced all the symptoms (and then some — tinnitus and vertigo can be so relentless that you can not even sleep — much less get out of bed and have any kind of existence), tried all the meds, had all the “tests” (including spinal taps) and seen numerous specialists including UCLA Medical School & world famous House Ear Clinic in LA. Mine was/is a life changing experience. I am now 62 and had to drop out of college because I woke up one morning and had to crawl out of bed — vertigo, tinnitus, vomiting and had 100% hearing loss in my right ear. This went on for months/years. There is a reason why Van Gogh cut off his ear and why “Starry Night” was painted the way it was. Second only to pain, ear problems file most of the top ten disabling symptoms. Briefly and loosely stated, the best label current western “medicine” have given me is that of Menieres. I have gotten fairly good about evaluating ENT types and I am not very impressed. Roughly speaking the 80/20 rule applies to them (and doctors in general). I hope everyone can persevere and find a good doctor who falls in the 20% category — someone who truly puts the patient first and is good at their trade. After several years and many ENTs, specialists, “tests & procedures”, I stumbled upon an ENT type who said try this … it will help. It was Valium at 5mg three times per day. Within 4 to 6 hours my vertigo completely stopped — after many years. For me this was like a miracle: I could now drive a care and earn a living. It is important to be sure you are put on an effective dose — there is no room for wimpy “doctors”. As I look back, over the years, I often wonder: could all those “doctors” be so dumb — why wasn’t this offered up early in my medical experience — even if only as a diagnostic tool.
For those who may be stuck with on-gong balance problems (because of ear damage) the body does some good adaptation but it takes time (if you are fortunate enough to find good help, you might be able to accelerate the process. The eyes, legs (muscle groups) and feet all help compensate for the loss of the ear(s). Since I did not trust my ability to drive safely (vertigo could get worse with little or no warning), I did a lot of walking and trying to ride a bicycle. Bicycle riding was probably a great balance exercise for training the eyes to carry on were the ear stopped. The point is that one can regain 80 to 90% of your balance back. It isn’t perfect. For me, if I get caught in a really dark room (without a focal light source), I stop moving and do a controlled crash to the ground — I have lost any sort of balance control. Now, when that happens, I just think it is funny and crawl my way to achieve some sort of focal reference points.
I know things can be much worse and I am always amazed at how the body works at healing — or should I say balance –itself. Regrettably, there is more to this tale. I hope that my narrative is a help. Never give up.

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