← Return to Educating others on autoimmune diseases

Discussion

Educating others on autoimmune diseases

Autoimmune Diseases | Last Active: Nov 21, 2016 | Replies (61)
Comment receiving replies
@kimpf

I was diagnosed with Lupus 18 years ago and 'upgraded' to MCTD several years ago. I have also had 2 minor strokes. In November I was diagnosed with Pulmonary Fibrosis, Yuk! I have my first appointment with Mayo in Phoenix in March. Eventually, I guess a lung transplant will be considered.....

Jump to this post

Replies to "I was diagnosed with Lupus 18 years ago and 'upgraded' to MCTD several years ago. I..."
Camille | @camille | Apr 19, 2012

Hi Kim,
I'm sorry you are suffering with Pulmonary Fibrosis.
I just got diagnosed with MCTD, and in the past was misdiagnosed with asthma. (Was taking immunotherapy and subsequently had pulmonary complications and took Prednisone.)
I had a mini stroke at work I think. Please tell me more about your experiences with this illness, and how your appt. at Mayo went.
Camille

VIEW AND REPLY
terigrace@hotmail.com | @terigracehotmailcom | May 26, 2012

I also have MCTD and an interstitial lung disease called BOOP which has caused pulmonary fibrosis. I have Sjogrens Syndrome also. I have been on prednisone nonstop for 8 years now along with numerous other meds. My bones are beginning to fracture thanks to all the steroids not to mention the weight gain and mood swings. Anybody else on steroids indefinitely?

VIEW AND REPLY
sismom1 | @sismom1 | Dec 11, 2012

I have been diagnosed with mctd and fibromyalgia. Diagnosed 6 yrs but I think it started 15 yrs ago (based on everything I read). I have never heard of strokes being a problem. My rhuemy is not been very forthcoming with info on my mctd and would appreciate any info of strokes because of mctd. I try and read eveverything I can but any info would be helpful.

VIEW AND REPLY