@judybl1 That's the problem. Research seems to indicate that there are numerous causes of BMS. Having seen top oral pathologists in NYC and Boston, I learned that they have little to offer: certainly no cure and very little effective treatment. One thing I learned was that medical opinion is that this is neurological--that is, the nerves on tongue and other places are severely damaged. They can regenerate, but it takes an extremely long time. Sometimes never.