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Burning Mouth Syndrome. I have it very severe.

Skin Health | Last Active: Jun 11 8:57pm | Replies (554)

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@judybl1

I have suffered from this condition for 9 years. I take 0.5 mg of Xanax, which help some. It also causes dry mouth and sometimes trouble speaking. I researched about it when I first got it. I can never find good information and I wondered if anyone has any recent information that might help. I wanted to get in a study but apparently not enough people have it to warrant a study. Please help if you can!

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Replies to "I have suffered from this condition for 9 years. I take 0.5 mg of Xanax, which..."

Hello @judybl1, welcome to Connect. You may notice, I moved your discussion and combine it with an existing discussion titled, "burning mouth syndrome very severe." I did this so all of the members discussing how they live and cope with burning mouth syndrome could see your message and have a chance to chime in and so you have the chance to click VIEW & REPLY to see all the posts already shared by Connect members. The discussion is long, but contains many members sharing their frustrations and how they manage the diagnosis.

@judybl1, other than the xanax, what other things have you tried to manage the symptoms?

@judybl1 My suggestion would be to Join the Burning Mouth group on Facebook. They are very active and supportive. There are over 2000 members from all over the world. I have suffered with it now for 9 years also and have it 24/7, it never left🥵
I have been to many different doctors and tried all the meds recommended to no avail. So not taking any meds for it now. I’m 74 now so I do take meds for other health issues. The older I get the harder the burn but having a supportive husband,family and friends makes life bearable.
I’m so sorry you are suffering and hope that one day we will wake up and it will be gone🙏🏻🙏🏻🙏🏻🙏🏻