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mygrigio (@mygrigio)

Burning Mouth Syndrome. I have it very severe.

Skin Health | Last Active: Mar 6 1:23pm | Replies (532)

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I am 74 years old and have had BMS for several years. I was told this by a dermatologist. He was the only one to find this. Saw primary, ENT, Dentist. Not one of them found this until he did, then they all acted like they knew what I was talking about. I have had shingles (without the blisters) 3 times. I get fever blisters often. Had dentures that I can't wear because my throat started to close one day and my mouth wouldn't work, I couldn't talk at all. None of the doctors could explain this but they say don't wear the dentures, so I have no teeth. Several years ago I found a mouth wash at Walgreens that contained peroxide. It seemed to help but they quite carrying it. I found it once online at $12. a bottle. Now I can't find it and I can't remember the name.I'll try again.
Once when I had a mouth and nose full of fever blisters a friend told me about taking large doses of L-Lysine (3,000 units daily) Now when my mouth starts burning and I see the start of fever blisters I start taking L-Lysine immediately and it knocks it right out. My primary care doctor has also given me Famciclovir 500 MG.an antiviral It seems to help too. This is for the Herpes virus but it seems to stop the burning of my mouth which can be more the virus.
I have not had the pain problems that most of you talk about. I will pray for you all. God Bless.

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Replies to "I am 74 years old and have had BMS for several years. I was told this..."

I too take 1,000-2,000 mg l-lysine daily to control the cold sore/fever blister outbreaks that seem connected to BMS but I have not yet had shingles. I also have a supply of both 500 and 1,000 mg valtrex if l-lysine does not suffice. I was just tested for heavy metals and my system has a lot so will be detoxing – hoping this may lead to helping my burning mouth.

@donnaclabaugh Thanks for one more piece of a puzzle and I 2nd your use of the L-Lysine. I just read this last week in the newspaper column called The Peoples Pharmacy that one person who wrote in about cold sores says eating Kiwi fruit can help get rid of them and the authors said there was some research backing this up. Interesting that seem to be many reasons for mouth sores and many ways to help get rid of them!