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Burning Mouth Syndrome. I have it very severe.
Skin Health | Last Active: Dec 7 11:26pm | Replies (581)Comment receiving replies
@jshdma - I have been dealing with this for several years and was first told it was reflux but I don’t buy into this theory in my case. What did help was amitriptyline starting with 10 mg and gradually increasing (Max 50 mg). It takes a little while for this to start working - I guess it needs to build up in your body to start calming the overactive nerves that are causing it. I’m pretty sure mine started with dental work that affected some of the nerves as TMJ on my affected side began around the same time also.
I also began using Hello toothpaste (the one With activated charcoal).
In addition I have been using several essential oil‘s( frankincense, myrrh, copaiba, eucalyptus) on my jaw, throat and bottoms of my feet several times today, especially at bedtime . I also Occasionally take CBD oil internally as well as mixed with the other essential oil’s when it is particularly bad burning.....the CBD addition is new so am still experimenting with dosage and frequency. My BMS is not gone but very manageable with all this.
I know it is very frustrating so I hope you find some answers from my journey.
Replies to "@jshdma - I have been dealing with this for several years and was first told it..."
Thanks for the info. I prefer to take a more natural route than taking meds that have so many side effects. This is a healing journey and I believe we can find answers to what works best for us. My doc at Mayo just put me on Clonazepam three times a day after meals but I am using it at night only at this point. I started using Hello toothpaste and also use essential oils but have never tried putting them on my jaws or throat. I’ll surely try this! Also, I use CBD oil night and I definitely think this helps with rest. I am 61 so I guess that put me in the “old” category but I believe one day I will find what works to extradite this pain and feel normal. And I definitely know stress makes it flair but I wouldn’t consider myself a depressed individual.
@mamajomclane Thanks for info. With me BMS definitely has nothing to do with acid reflux, which I have never experienced in my life. BMS seems to have many possible causes, probably several together, but no cure. Dental work is probably one likely contributor. Docs don't know what to do with it.
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@mamajomclane, your experience is very similar to mine. I am certain it resulted from dental work, I now have TMJ. My doctor is going to prescribe a topic paste with amitriptyline in it. I'll let you know how it works.