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Burning Mouth Syndrome. I have it very severe.
Skin Health | Last Active: Nov 6 10:38am | Replies (564)Comment receiving replies
@lynschupbach For BMS I have been through a series of drug suggestions, none worked. By now BMS has affected my entire mouth (thickened tongue, lips) as well as continuous burning sensation in various spots. These conditions have also affected my speech; I now have a lisp, for example. I have changed my diet drastically, including elimination of most of my favorite foods. Someone told me that it was caused by eating too many peppers (not hot, just sweet red peppers). It seems that this condition is very common, but most docs have never heard of it. Very discouraging to think this is IT for the rest of my life.
Replies to "@lynschupbach For BMS I have been through a series of drug suggestions, none worked. By now..."
@jshdma - I have been dealing with this for several years and was first told it was reflux but I don’t buy into this theory in my case. What did help was amitriptyline starting with 10 mg and gradually increasing (Max 50 mg). It takes a little while for this to start working - I guess it needs to build up in your body to start calming the overactive nerves that are causing it. I’m pretty sure mine started with dental work that affected some of the nerves as TMJ on my affected side began around the same time also.
I also began using Hello toothpaste (the one With activated charcoal).
In addition I have been using several essential oil‘s( frankincense, myrrh, copaiba, eucalyptus) on my jaw, throat and bottoms of my feet several times today, especially at bedtime . I also Occasionally take CBD oil internally as well as mixed with the other essential oil’s when it is particularly bad burning.....the CBD addition is new so am still experimenting with dosage and frequency. My BMS is not gone but very manageable with all this.
I know it is very frustrating so I hope you find some answers from my journey.
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Just curious as to if anyone thinks stress triggers more pain? At times I can feel my mouth and throat “fireing up” more than others. It never goes away but at times seems more severe when stress is going on.