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Burning Mouth Syndrome. I have it very severe.

Skin Health | Last Active: Dec 2, 2023 | Replies (552)

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@sheetrock0131

I have had my mouth swabed for a virus. It showed nothing.
MRI's all they say is I have BMS NO CURE!!!! I don't know anyone in the 20 plus years I've had this.That no meds,or therapist and psychologist can cure it.I'm sorry,but I don't believe they can take it away.Maybe manage your stresses in your life.We all know and agree that stress heightens the burn,but never completely gone.
My heart goes out to all of the sufferes who have this horrible condition. .

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Replies to "I have had my mouth swabed for a virus. It showed nothing. MRI's all they say..."

How did a MRI Diagnose your bms, @sheetrock0131 . Or did I just read it wrong.

The MRI ,and I add ,I had at least 3.
They show nothing.Always same answer.
Brain is fine.
There is an operation, Dr goes into the part of the brain,where the nerve that's causing your mouth to burn
Then they put a sponge under that nerve,so it rests on the sponge and pain free.
It is such a delicate procedure,it's a risk.
Ypu can have a stroke, possibly die,I'm not sure it even lasts long.
I just know the pain ctr.where I go, says absolutely no.
He said extreme, what the heck am i???

Yes I know about that. I believe they do that on the 5th cranial nerve which is the trigeminal nerve. Can have numbness as result or stroke and it would need to be repeated. They can dissect the nerve or use a ballon surgery also. Since I’ve been in the medical field for 40 yrs I know that I would not do it, too risky, that’s probably why your dr said no.

I agree with this opinion. My PM doctor and others have said the same. It's just too risky, and I have been told I have TMJ, TN and serious sinus issues.