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Burning Mouth Syndrome. I have it very severe.

Skin Health | Last Active: Dec 2, 2023 | Replies (552)

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@laci80525

I found out it is caused by virus.That was after testing done.

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Replies to "I found out it is caused by virus.That was after testing done."

Ms Laci you may be onto something. I looked that up and the article said this 65 yr old Dr Nagel (see recent post from someone else,) has found the herpes 1 virus causes it. I’ve never heard anything about that research. The anti-viral drug used for that was Valtrex which I currently use when I have fever blisters but I don’t take it for the length of time recommended by Dr Nagel. I encourage others to look this up. I’ll let everyone know how my valtrex works. If this works Ms Laci I will send you a present.

I don't know where you heard that or what tests were done. I have had BMS for 8 years. Originally I had every test in the book. My husband is a surgeon so I got the most thorough work up available to man. They finally ruled everything out. Also, I am one of those freaks that has a natural immunity to viruses. I have never even had a cold sore.
What clued them into the cure was the fact I had mild polymyasia and Raynaud's disease. Both neurological disorders. So I started taking Lyrica and OH JOY. Problem solved. Now I am down to 300mg of Gabapentin a day and have never felt better.

I'm confused.What did you mean,where I heard what????I have had this burning mouth syndrome for many many years.
I took gabbapentin . I have been on cymbalta.By the end of the day,nothing helps.My tounge continues to rage on and on.Its referred to by my phsycoligist as the devil in the mouth.
God give strength to all those who suffer from this horrible condition. .

There is an article called one woman's day,I believe.
She did have a herpes virus, and was given meds.for several weeks, and did have the virus. I went to a infectious disease Dr and had him swipe my tounge.
Sadly it had no viruses.
I do have the article. .It is definitely true.

I read about that Dr in Colorado.
She helped the woman who carried the herpes virus.
I to tried a infectious disease Dr, had him swab my tounge and mouth.
Sadly, I had no virus. I just have BMS
I'm happy for the person who says her phys.Dr has helped.I have gone to one and nothing helps.I had accunpuncture, healing priests, and hold water from Lordes in France..God bless

What kind of testing did you have done?

@this is very intriguing as I also have Raynaud's disease. I don't know anything about polymyasia. I have tried numerous medications, but now Lyrica. Some doctors really don't like Gabapentin, but if it works for you I'm happy to hear that. Could you describe polymyasia briefly? Thanks so much.

Poly means many. my means muscle asia pain. many muscles in pain. Especially around shoulders and stiff in am. It’s also called polymyasia rheumaticum. It occurs around shoulders upper arms and around thr trunk and thigh on the body.

But, did you try the medication, valtrex? Even after you had a zero load of hvs1. Might still be worth a try.

Oops,yes I did try the valtrex.
Then Dr called me and said no,I didn't have the virus.