Connect
← Return to Burning Mouth Syndrome. I have it very severe.
Discussion
Burning Mouth Syndrome. I have it very severe.
Skin Health | Last Active: Nov 6 10:38am | Replies (564)Comment receiving replies
I had to get a referral from Dermatologist in Colorado to go to Rochester. Very disappointed . Came home with a packet of information just like what you get off the internet. Was very expensive for Insurance Company. Later went to Anchutz right in Aurora Colorado. Dr Nagel is a researching Nuerologist for Burning Mouth. Referred to another Dr to have nerves blocked. As far as Mayo, wish I would have seen neurologist there vs Dermatologist. Just my opinion.
Replies to "I had to get a referral from Dermatologist in Colorado to go to Rochester. Very disappointed..."
Hello Sheetrock, sorry I have been MIA. I'm glad to be back in the conversation. I'm interested to hear how you are doing overall.
I certainly will keep you posted..God bless
If one received Botox it seems you’d keep biting your tongue. I would say that it’s not fda approved. That would mean that it has been tested and a call far and wide Had gone out for test subjects. As bad as bms is I would never be a test subject for the injections. I do realize that there is times all of us suffering from this would trade years of our lives for a cure. There is a difference between fda approved and fda cleared. Cleared means that it will not hurt you and approved means it’s been rigorously tested and shown to be effective. Mark my word 1 Day Science and Medicine will understand it and then
BMS sufferers will have a treatment and hopefully a cure. Until that day comes we all have to help ourselves and continue to discuss it in forums like this. We just can’t give up hope.
Connect
I would love to know if you had a nerve block.
I just read an article, some Dr.in Italy, gave his patient botox shots in the tounge. It lasted up to 5 weeks.
No side effects and continued to get more.
I have an appointment in January to see a maxofacial surgeon, it is to ask if F.D.A.
Has approved it..
Please let me know about the block..