Burning Mouth Syndrome. I have it very severe.

Hi @rgpadilla — I hope you don’t mind that I moved your message to this discussion so you can meet some others who’ve experienced the “burning tongue” feeling you mentioned before, like @margaretdaniels ,@suzannemc , @texan , @bonitav, @journey000 @connielaine, @beachgirl and @missbret. I’m hoping they will chime in with some thoughts about dealing with this condition for your wife.

These members have mentioned getting treatment at one of the Mayo Clinic campuses specifically, and I am hoping they will share their experiences with you: @bobv and @laci80525.

Has your wife been diagnosed with BMS? How is she doing with her tongue pain lately?

Hi Lisa,
Appreciate your checking in on us. Update: found a Dr. S. Elad in Rochester, NY who is a specialist in Oral Med. (BMS) and has me trying a soluble form of clonazepam (.1) which I take (1 tsp) 2 x a day as a mouth rinse. Been trying it for a couple of weeks- mixed results- some days seems to calm the burning; other days, exacerbates the dry mouth & lips. Also seeing a psychologist who does cognitive behavioral therapy so will see how that goes. Biggest frustration is finding a dentist who is amenable to learning something new and not be defensive about what he doesn't know, i.e. the thin wafer plates a dentist made for connielaine who has been a tremendous help and support to me. And lastly, not sleeping well, don't know what that's about but it sure does increase the pain in the day. Hope all of you are continuing to hang in there, God Bless- thoughts & prayers to all suffering with this.

Maggie45

I find much relief with very thin bite plates-either upper or lower-seems to keep teeth apart enough to keep nerves from firing. Daytime wearing when needed very comfortable and for me relieves burning pain right away.

Plsss helps me
i eat from my left side of mouth since 8 years and now it feels like my left side cheek is harder than left.
And glands below jaw the sabmandibular glands it feels like that i can feel my left side below jaw glands more than right jaw since 1 year and now i am obsessed with it i always touch my left submandibular glands every 5 minutes

i want to ask does eating from one side since 8 years can cause that glands more feel than the other non eating side.
There is no hard lump in it. It feels like a movable object but i cannot hold the lump inside it only feels moves when i press my fingers in jaw. I feel same on the non eating side but not like the eating side

Can anyone add anything that helps to calm burning mouth syndrome down? It feels like my mouth and throat are on fire . It wears me down.

HI, @mygrigio. Been thinking about you, and wondering how things are going with your burning mouth syndrome? Have you found a doctor who could help you with it?

Hi, @shellb123 -- sounds like you had come to some conclusions about medications to take and not to take for your burning mouth syndrome. How is it going on the Neurontin? What has your conclusion been about the role of anxiety in your BMS? Has the anti-anxiety medication and supplements made a difference for you?

Hi, @kinde. Are you still using the "fight fire with fire" cayenne pepper and water method to relieve your burning mouth syndrome pain? If so, how is it going? Are you able to tolerate it okay?

Hello, karvar16. Just wanted to check in with you and see if you found the care you were looking for with a doctor specializing in burning mouth syndrome? How is your pain these days?

HI, @hcbb305--wanted to check back with you and see how the "magic mouthwash" and changes in your toothpaste is going for your burning mouth syndrome pain?