Connielaine,
So sorry to hear after such a long time, no relief.... I have no idea how you & others have endured this long; only 2 yrs. with this, and I can't imagine my future. It is beyond depressing. So I feel a little silly suggesting anything but you may want to check in with Lauren- I followed up on her experience with lazer treatment (have had only one to date) and I think I do notice less intense pain/burning- that's the good news. Downside (and I don't know if this is part of your condition but it's a big one for me) is I believe it has adversely affected my taste which is pretty much non-existent anyway. But I am going to run this by my dentist and see what he thinks- it is a relief not having that burning 24/7 but I am nervous about now not being able to taste the few things I've been able to in the past.
I am still trying to pursue the hypnosis (have you tried that?) but living in Buffalo (the most non progressive medical community imaginable) I am going to have to go out of the area and pay for it out of pocket.

I think of all of you suffering with this and you are in my prayers. I think one of the worst aspects is feeling invisible- I certainly don't go around telling everybody about it but sadly many of those who know just don't seem to "get it," and I find that incredibly frustrating and alienating. I've gone from an optimistic extrovert to prefer being alone with the pain and my thoughts which go very dark often and that scares me. No luck with shrinks- I have found them to be some of the worst listeners and offenders.

Take care- I hope knowing there are others thinking about you helps. This site has been a God-send.

Maggie45