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mygrigio (@mygrigio)

Burning Mouth Syndrome. I have it very severe.

Skin Health | Last Active: May 5 11:28am | Replies (537)

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@shellb123

The Mayo Clinic recommends Alpha Lipoic Acid & Vitamin B which are both harmless 🙂 I take ALA 200 mg. 3x day & Vit B once per day & I believe that they have helped some. Also, all of you who are suffering have you had any surgeries or tooth work? This happened to me after a tonsillectomy & I do believe I may have had some nerve damage?! Also, anxiety is a cause of this & I suffer from that as well; do any of you? The safer route to Klonopin which you’ve heard me suggest to stay away from is Neurontin, I am on 900 mg. 3x day, yes that much! Plus the ALA & Vit B & Zoloft for the anxiety. I also have some good days & some bad days & some inbetween days, the bad days are awful!! This is such a tough disorder to have!!!! Sometimes I find eating something small can change the way my mouth feels or chewing gum. I wish there were Dr.s that were knowledgeable about BMS because those of us who suffer need some guidance & relief! May God Bless you & keep you as pain free as possible!!! 🙂

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Replies to "The Mayo Clinic recommends Alpha Lipoic Acid & Vitamin B which are both harmless :) I..."

Hi, @shellb123 — sounds like you had come to some conclusions about medications to take and not to take for your burning mouth syndrome. How is it going on the Neurontin? What has your conclusion been about the role of anxiety in your BMS? Has the anti-anxiety medication and supplements made a difference for you?

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