It's awful I know 🙁

And I also have been to every Dr. in the world who looks at me like I'm from another planet & tells me to see a different Dr. & you wind up going in circles!!! SO FRUSTRATING!!!!!

I have found a wonderful group on Facebook. They are way ahead of dr's. I urge everyone to join us and discuss what you are going through. I went to Mayo and was so disappointed at the end of my appt. They do not know anything. Please try FB.

what is the name of your group on face book. I suffer from burning mouth sev

Just type facebook.com/burning mouth syndrome I think. If you have problems let me know.

I started with my dentist who said ‘nothing wrong with your teeth. They look great.’
He sent me to my primary care doctor who prescribed an anti fungal med. Didn’t work. She tried something else. No luck, so she sent me back to dentist - who sent me to an oral surgeon. He diagnosed bms. I’ve seen him 3 times. Tried different meds. No help. In 4 months, i’ve Gone from’great teeth’ to receding gums. I’m glad to have found this group.

I an 74 and have had this problem off and on for several years. It comes an goes. 2 years ago the Dermatologist ordered "magic mouthwash" . The formula is on the internet. It is mainly an antacid, a decongestant, and lidocaine. It does not cure but it is major relief. You swish and spit several times a day. It stopped the pain and burning so I could eat. This is what is in it. “Magic Mouthwash” Combine equal parts: -liquid diphenhydramine hydrochloride (Benadryl) -aluminum hydroxide/magnesium hydroxide (Maalox; do NOT use Kaopectate) Shake/combine well and swish/gargle with 5-10mL, then spit, every 4-6 hours. Wait 30 mins before eating or drinking." It is only for 10 days. Like I said it is not a cure. When I used it last time the problem went away. Now its back. My current doctor never heard of it. But she did order it for me and it has helped so I can eat. This time it didn't go away. I see her next month to try an figure it out. It least this is a good temporary fix. My insurance did not cover the prescription, but it was only around $14 at Walgreens. Hope this helps you

I too suffered. Finally after 3 years an emergency room doctor treated me and referred me for an esophagus scope. I was diagnosed with gastritis with hyperplasia , reflux, and Barrett’s. The reflux was silent, I never knew I had it. Treatment with pantoprazole 40 mg twice daily, sucralfate 10 ml 4 times daily, and following all on line guidelines for reflux regarding eating and sleeping. Took 30 days to ease the burning mouth and tongue a little bit. After 60 days I was able to stop pain pills and pregabalin. I have had to change to different PPI’s because of side effects. My body can finally relax. I am burning pain free a lot of the time. I also stopped toothpaste with SLS. Now if burning breaks thru I reach for a Pepsid complete to chew which helps stop the burning.

I too suffered. Finally after 3 years an emergency room doctor treated me and referred me for an esophagus scope. I was diagnosed with gastritis with hyperplasia , reflux, and Barrett’s. The reflux was silent, I never knew I had it. Treatment with pantoprazole 40 mg twice daily, sucralfate 10 ml 4 times daily, and following all on line guidelines for reflux regarding eating and sleeping. Took 30 days to ease the burning mouth and tongue a little bit. After 60 days I was able to stop pain pills and pregabalin. I have had to change to different PPI’s because of side effects. My body can finally relax. I am burning pain free a lot of the time. I also stopped toothpaste with SLS. Now if burning breaks thru I reach for a Pepsid complete to chew which helps stop the burning. I also learned along the way to eliminate medications to see what additional burning medications caused.