← Return to Burning Mouth Syndrome. I have it very severe.
DiscussionBurning Mouth Syndrome. I have it very severe.
Skin Health | Last Active: Apr 19 12:49pm | Replies (627)Comment receiving replies
Replies to "I have had neuropathic burning mouth syndrome since Dec. 2010. On gabapentin and Lyrica. Nothing seems..."
Dermatologist Dr Bruce at Mayo, Jacksonville put me on Amitriptyline-worked great for few months then stopped. Still searching
Yes I suffered for over 3 years, had many dental and medical doctors. What finally helped was I got a scope of my esophagus. Diagnosed with gastritis w hyperplasia, acid reflux, bile reflux, and Barrett’s. Treatment with high dose PPI and sucralfate liquid 4 times a day gave me relief after 2 months of treatment I could stop all the other medicine I had been given for burning mouth. I also follow all guidelines on line for treating reflux including what I drink, eat, and how I sleep elevating upper body. Took time and patience. Still taking reflux medications. If I do have burning break thru I reach for a OTC Pepsid complete chewable and that stops the burning pretty quickly.
I had taken gabbapentine many years ago.
I've had this condition for many years.I have taken amatriptoline,currently on cymbalta,clonazapan,and a mild dose of oxycodone.
I have been receiving botox shots,which I read had been helping with this horrible condition. It really doesn't help.
My next move is to check out laser.I have been to a hospital in Boston.A oral maxofacial surgeon has been giving me the shots.He recommend laser.I'm going to find a Boston hospital who gives laser.
If you have some time,please Google ,botox for b.m.s.
Also Google, laser for same.
This is a horrible condition.
I've been to most Boston hospitals, and so many meds.it over 18yrs.
I'm mentally drained.
As a psychologist, referred to it as ,the devil in the mouth.
If you need any additional info.please feel free to ask.
I wish you luck with the gabbapentine, but sadly nothing has helped me..
God bless..