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Hello everyone, I totally understand what everyone is saying about the pain and the depression. Currently I am 20 years old and was diagnosed with Fibro when I was 16. For about 6 years prior to being diagnosed I went from doctor to doctor being told that nothing was wrong with me and I just needed to stop making things up. (That obviously did not help with the depression that I was already facing.) When I was a senior in high school I decided to do a presentation for one of my classes on Fibro because I wanted people to understand what people with Fibro go through. I did not want any sympathy from the kids that I went to school with I just wanted them to understand that just because I look normal and act normal does not mean that I am. The psychologist that I go to took my presentation to a meeting she was talking at and wanted to share it with other psychologists. I understand what you guys mean when you say that doctors don't always know what Fibro even is. That part really SUCKS!!!!!!! I have tried Lyrica in the past but it did not work well for me so currently I am not taking anything to manage the Fibro, which once again SUCKS!!!!!! I am praying for you all and hope that relief comes to everyone dealing with this.
Replies to "Hello everyone, I totally understand what everyone is saying about the pain and the depression. Currently..."
How can you stand the pain. It is hard to get other to understand because we look normal, I think my depression has gotten deeper since my diagnoses because I have had so much heartache in my life and I ask myself what more do I have to be put through in my life, haven't I suffered enough. I would love to read your presentation if you still have a copy of it and it is something that you can e-mail. If it is something you can e-mail could you e-mail me a copy to gdmixon@yahoo.com. Maybe it will help me get others to understand.
Ask your doctor to let you try Gabapentin (Neurontin). I can't believe how much relief I got. I am also currently having some water therapy and that helps also. When that stops I am going to a nearby indoor "heated" pool for exercise. Moist heat really helps. Work some, get some rest and work some more if you can. I pray daily about this and I really think that helps also. My husband has been a big help. Someone comes to do my heavy cleaning now like vacuuming, mopping and dusting. I realize I have my limits to avoid the pain. Good luck to you and peace be with you and your family as they will deal with this with you also.
How long have you been on the Gabapentin? They put my grandfather on this medication and it made him really tired and he slept a lot. I don't know if that is a good comparison to make because he had also had a stroke and some heart problems. Is this a problem for you? Oh the "heated" pool sounds really nice! It is important to know that it is ok to ask for help, and to know what your own limits are. God bless you!!! I also believe that praying is a big help! God knows better than any doctor what we need. May the Lord bless you and your family.
I am just know seeing your post. I will try to locate my presentation. I did have it saved on my computer, but of course my computer has been giving me problems and a lot of my files were deleted. I know I gave a copy to my psychologist for her to use with some of her other patents I will see if I can get her to make me a copy and I will send it to you as soon as I can.
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I also suffer with the same issues.......for a very long time. Its really hard, I want to try medications but I am afraid it will just make things worse.