Hi I have applied for Social Security benefits because of Fibromalgia, COPD, CHD and depression. They have arranged for me to see a Mayafacial Pain Syndrome Specialist this coming Tuesday. Any suggestions regarding how to explain the chronic aches and sometimes screaming pain would be appreciated. Every Doctor I've seen has told me to "lose weight, exercise and stop complaining". Is that realy all I can do? I do not have insurance, but I am in a pain study program through our PCP's office Would really like someone to talk to who knows what I'm talking about.
Having a good day today, feel like I've been hit by a truck again, but just a pickup and not a semi this time. LOL. I do have some swelling but have been told in the past that that could be from the congested heart disease. I take a diuretic every day along with BP meds. I was diagnosed with anxiety disorder when I was very young, so I take Xanex 3 times a day. I also take muscle relaxers which seem to help with the stiffness and pain. Before I lost my insurance I was on a lot of meds, but now I can only afford to take the BP meds, xanex and muscle relaxers. I eat over the counter tylenol like it's candy. The pain study I'm on seems to help with the tension head aches and sometimes the aches, but I don't actually know what it is I'm taking.
Sorry to hear about your son. That would be so difficult to deal with. My 1 year old grandson lives with us and it is getting more and more difficult keeping up with him.
My pain is mostly in my arms, hips and legs. It is so hard thinking I can just get up and do what I want to do and then realizing once I get started I can't finish it. Hope you have a good day and good luck with you S.S. appointment..
I was diagnose with Mayo Facial Pain syndome 10 years ago, but have since been told that, that, was just a pre-symtom of Fibromalgia. Over the years I have been tested for Lupus, M.S. and almost everything else under the sun. In the past few years the heart disease and lung disease have gotten worse and exercise or even physical therapy is impossible for me now. I do some stretching exercises, but sometimes stretching brings on muscle cramps and my joints will lock. Have you ever had that happen? Feels like I get charlie horses up and down my spine. There are so many differant things going on I believed for years it was all in my head.
Hi I have applied for Social Security benefits because of Fibromalgia, COPD, CHD and depression. They have arranged for me to see a Mayafacial Pain Syndrome Specialist this coming Tuesday. Any suggestions regarding how to explain the chronic aches and sometimes screaming pain would be appreciated. Every Doctor I've seen has told me to "lose weight, exercise and stop complaining". Is that realy all I can do? I do not have insurance, but I am in a pain study program through our PCP's office Would really like someone to talk to who knows what I'm talking about.
Catherine, have you seen a doctor specializing in arthritis? A good doctor will know exactly about your pain. There is a drug called LYRICA that helps with the 'Fibro.
I've heard of lyrica, but because I have heart disease no one would prescribe it for me. Doesn't matter now any way because I don't have insurance. I use heating pads and topical rubs for the joint pain, but I also have pain in the middle of my extremities, i.e. forearms, thighs shins ect. I also get rippleing contractions up and down my spine Have you ever felt that way?
Hi I have applied for Social Security benefits because of Fibromalgia, COPD, CHD and depression. They have arranged for me to see a Mayafacial Pain Syndrome Specialist this coming Tuesday. Any suggestions regarding how to explain the chronic aches and sometimes screaming pain would be appreciated. Every Doctor I've seen has told me to "lose weight, exercise and stop complaining". Is that realy all I can do? I do not have insurance, but I am in a pain study program through our PCP's office Would really like someone to talk to who knows what I'm talking about.
Catherine, I am so sorry for all you are going through. I too have Arthritis, Fibro, and dealing with periphiial neiurology due to the chemo drug I took for my breast cancer. It effects my hands and feet. Lyrica is expensive but if you buy some Glucosamine/ Condrotin 1500/1200. I take two in the morning and two at night. It may take a while for it to start working but don't stop taking it. I have taken it for 15 years as suggested by a
Rheumatologist. Excuse my typing mistakes, my fingers have a hard time hitting the right keys. I used to be a good and fast typist but now I have to keep going back to correct.
If you get on SS and get Disability you may qualify for medical benefits. CHeck with your county social services also.,
i am in pain all the time and it is something people do not seem to understand. I get so tired. I do not want to do anything...fighting pain takes energy. I try to do one positiv thing for myself each day. I am so depressed I have run out of ideas. I hope this community will become an outlet for me. What do you guys need from it?
Like you I am in pain all the time. Some days are worse than others, my worst time is at night. When my muscles start to relax and I begin to drift off to sleep, I'll get cramps in my neck ,shoulder and then up and down my spine. I don't know if this is normal fibromalgia symptoms or not. Have you ever heard of any one having these symptoms? I am always tired, thus irritable. My husband blames everything on menopause! And my kids just say "oh, there goes Mom again." I try not to complain but sometimes I can barely get out of my chair. I was hoping for this forum to be an outlet for me too. So if you ever want to talk, just let me know. I'll be checking this site as often as I can.
Hi I have applied for Social Security benefits because of Fibromalgia, COPD, CHD and depression. They have arranged for me to see a Mayafacial Pain Syndrome Specialist this coming Tuesday. Any suggestions regarding how to explain the chronic aches and sometimes screaming pain would be appreciated. Every Doctor I've seen has told me to "lose weight, exercise and stop complaining". Is that realy all I can do? I do not have insurance, but I am in a pain study program through our PCP's office Would really like someone to talk to who knows what I'm talking about.
I think you typing is great.. I used to be able to spell too, but that has gotten lost over the years. My husband has periphial neuology in his knee because of the chemo and radiation treatments from his cancer treatments too. At least I think that's what they called it. He has been on S.S.D. for over a year now. If I can get a Doctor to say that I am unable to work I can get assistance. But since I don't have insurance I don't have a Doctor that I see regularly. The Doc I see now is getting ready to retire, he only charges me $80.00 per visit, but doesn't want to get involved in a "complicated case" He wouldn't even prescribe a parking placard for me. I see the S.S. doc Tuesday, I'm not expecting to be taken seriously, but we never know. Maybe I will get lucky and he or she will really understand that I can't work, even though I wish I could. I loved my job, but I couldn't physically do it any more. I haven't worked since March of 2010 and now all our savings are gone. Worry, stress and pain it's a vicious cycle. Hope you have a good day. Take care and thanks for friending me.
I have been following Dr. Rodger Murphree's Fibro Program and feel much better. Go to treatingandbeating.com and order his book on treating Fibro and Chronic Fatigue. I have found using natural supplements helps me much more then any prescription medications I have tried in the past...toooo many side effects from prescription meds that are the same as the symptoms of Fibro. Hope this helps ~
Hi Bugs38
I was diagnosed with Fibro about 9 months ago. I have 2 cousins with Lupas and a couple family members with the fibro. I know from my experience that nothing works as of yet. I am being sent to a orthopedic cause doc is conceren of what else is wrong.I have horrible problems with my ankles and it does affect me in every way...DRIVING is a disaster most the time.So i limit to how far i do drive.
Oh I'm sorry. I have recently (6 months or so) found relief with a cocktail of medications mixed with massage, exercise and epidural steroid shots to my back. I don't think one thing will ever be enough to deal with it but I have found SOME relief. I hope you do, soon. I take muscle relaxer, sleep aide, meloxicam, cymbalta, ....the list goes on and on. I hate taking them but my choices are limited. Am I the only one on the double digit medications?
Connect
Connect
Like
Helpful
Hug
Having a good day today, feel like I've been hit by a truck again, but just a pickup and not a semi this time. LOL. I do have some swelling but have been told in the past that that could be from the congested heart disease. I take a diuretic every day along with BP meds. I was diagnosed with anxiety disorder when I was very young, so I take Xanex 3 times a day. I also take muscle relaxers which seem to help with the stiffness and pain. Before I lost my insurance I was on a lot of meds, but now I can only afford to take the BP meds, xanex and muscle relaxers. I eat over the counter tylenol like it's candy. The pain study I'm on seems to help with the tension head aches and sometimes the aches, but I don't actually know what it is I'm taking.
Sorry to hear about your son. That would be so difficult to deal with. My 1 year old grandson lives with us and it is getting more and more difficult keeping up with him.
My pain is mostly in my arms, hips and legs. It is so hard thinking I can just get up and do what I want to do and then realizing once I get started I can't finish it. Hope you have a good day and good luck with you S.S. appointment..
I was diagnose with Mayo Facial Pain syndome 10 years ago, but have since been told that, that, was just a pre-symtom of Fibromalgia. Over the years I have been tested for Lupus, M.S. and almost everything else under the sun. In the past few years the heart disease and lung disease have gotten worse and exercise or even physical therapy is impossible for me now. I do some stretching exercises, but sometimes stretching brings on muscle cramps and my joints will lock. Have you ever had that happen? Feels like I get charlie horses up and down my spine. There are so many differant things going on I believed for years it was all in my head.
Catherine, have you seen a doctor specializing in arthritis? A good doctor will know exactly about your pain. There is a drug called LYRICA that helps with the 'Fibro.
I've heard of lyrica, but because I have heart disease no one would prescribe it for me. Doesn't matter now any way because I don't have insurance. I use heating pads and topical rubs for the joint pain, but I also have pain in the middle of my extremities, i.e. forearms, thighs shins ect. I also get rippleing contractions up and down my spine Have you ever felt that way?
Catherine, I am so sorry for all you are going through. I too have Arthritis, Fibro, and dealing with periphiial neiurology due to the chemo drug I took for my breast cancer. It effects my hands and feet. Lyrica is expensive but if you buy some Glucosamine/ Condrotin 1500/1200. I take two in the morning and two at night. It may take a while for it to start working but don't stop taking it. I have taken it for 15 years as suggested by a
Rheumatologist. Excuse my typing mistakes, my fingers have a hard time hitting the right keys. I used to be a good and fast typist but now I have to keep going back to correct.
If you get on SS and get Disability you may qualify for medical benefits. CHeck with your county social services also.,
-
Like -
Helpful -
Hug
1 ReactionAnyone w/fibro will tell you that it's not particular,Young old thin heavy,makes no difference,it's very painful,I'll be glad to shre about it.
-
Like -
Helpful -
Hug
1 ReactionLike you I am in pain all the time. Some days are worse than others, my worst time is at night. When my muscles start to relax and I begin to drift off to sleep, I'll get cramps in my neck ,shoulder and then up and down my spine. I don't know if this is normal fibromalgia symptoms or not. Have you ever heard of any one having these symptoms? I am always tired, thus irritable. My husband blames everything on menopause! And my kids just say "oh, there goes Mom again." I try not to complain but sometimes I can barely get out of my chair. I was hoping for this forum to be an outlet for me too. So if you ever want to talk, just let me know. I'll be checking this site as often as I can.
I think you typing is great.. I used to be able to spell too, but that has gotten lost over the years. My husband has periphial neuology in his knee because of the chemo and radiation treatments from his cancer treatments too. At least I think that's what they called it. He has been on S.S.D. for over a year now. If I can get a Doctor to say that I am unable to work I can get assistance. But since I don't have insurance I don't have a Doctor that I see regularly. The Doc I see now is getting ready to retire, he only charges me $80.00 per visit, but doesn't want to get involved in a "complicated case" He wouldn't even prescribe a parking placard for me. I see the S.S. doc Tuesday, I'm not expecting to be taken seriously, but we never know. Maybe I will get lucky and he or she will really understand that I can't work, even though I wish I could. I loved my job, but I couldn't physically do it any more. I haven't worked since March of 2010 and now all our savings are gone. Worry, stress and pain it's a vicious cycle. Hope you have a good day. Take care and thanks for friending me.
I have been following Dr. Rodger Murphree's Fibro Program and feel much better. Go to treatingandbeating.com and order his book on treating Fibro and Chronic Fatigue. I have found using natural supplements helps me much more then any prescription medications I have tried in the past...toooo many side effects from prescription meds that are the same as the symptoms of Fibro. Hope this helps ~
Oh I'm sorry. I have recently (6 months or so) found relief with a cocktail of medications mixed with massage, exercise and epidural steroid shots to my back. I don't think one thing will ever be enough to deal with it but I have found SOME relief. I hope you do, soon. I take muscle relaxer, sleep aide, meloxicam, cymbalta, ....the list goes on and on. I hate taking them but my choices are limited. Am I the only one on the double digit medications?