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fibro

Fibromyalgia | Last Active: May 15, 2023 | Replies (84)

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@catherineb

Hi I have applied for Social Security benefits because of Fibromalgia, COPD, CHD and depression. They have arranged for me to see a Mayafacial Pain Syndrome Specialist this coming Tuesday. Any suggestions regarding how to explain the chronic aches and sometimes screaming pain would be appreciated. Every Doctor I've seen has told me to "lose weight, exercise and stop complaining". Is that realy all I can do? I do not have insurance, but I am in a pain study program through our PCP's office Would really like someone to talk to who knows what I'm talking about.

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Replies to "Hi I have applied for Social Security benefits because of Fibromalgia, COPD, CHD and depression. They..."

Hi catherineb,
How are you ? fibro and depression comes together but i also have anxiety(caused from my son losing a limb) and now my doc thinks something wrong with my bones.my ankles hurts 24/7 and crack now my legs starting to swell bad. we thought could be the lyrica but i slowed down from taking it from 3 x's a day to 1 day. and im still swelling. and i have recently applied for ssi as well go to my first appointment in 2 weeks. My doctor has told me to excercise.

Having a good day today, feel like I've been hit by a truck again, but just a pickup and not a semi this time. LOL. I do have some swelling but have been told in the past that that could be from the congested heart disease. I take a diuretic every day along with BP meds. I was diagnosed with anxiety disorder when I was very young, so I take Xanex 3 times a day. I also take muscle relaxers which seem to help with the stiffness and pain. Before I lost my insurance I was on a lot of meds, but now I can only afford to take the BP meds, xanex and muscle relaxers. I eat over the counter tylenol like it's candy. The pain study I'm on seems to help with the tension head aches and sometimes the aches, but I don't actually know what it is I'm taking.
Sorry to hear about your son. That would be so difficult to deal with. My 1 year old grandson lives with us and it is getting more and more difficult keeping up with him.
My pain is mostly in my arms, hips and legs. It is so hard thinking I can just get up and do what I want to do and then realizing once I get started I can't finish it. Hope you have a good day and good luck with you S.S. appointment..

Catherine, have you seen a doctor specializing in arthritis? A good doctor will know exactly about your pain. There is a drug called LYRICA that helps with the 'Fibro.

Catherine, I am so sorry for all you are going through. I too have Arthritis, Fibro, and dealing with periphiial neiurology due to the chemo drug I took for my breast cancer. It effects my hands and feet. Lyrica is expensive but if you buy some Glucosamine/ Condrotin 1500/1200. I take two in the morning and two at night. It may take a while for it to start working but don't stop taking it. I have taken it for 15 years as suggested by a
Rheumatologist. Excuse my typing mistakes, my fingers have a hard time hitting the right keys. I used to be a good and fast typist but now I have to keep going back to correct.
If you get on SS and get Disability you may qualify for medical benefits. CHeck with your county social services also.,

I think you typing is great.. I used to be able to spell too, but that has gotten lost over the years. My husband has periphial neuology in his knee because of the chemo and radiation treatments from his cancer treatments too. At least I think that's what they called it. He has been on S.S.D. for over a year now. If I can get a Doctor to say that I am unable to work I can get assistance. But since I don't have insurance I don't have a Doctor that I see regularly. The Doc I see now is getting ready to retire, he only charges me $80.00 per visit, but doesn't want to get involved in a "complicated case" He wouldn't even prescribe a parking placard for me. I see the S.S. doc Tuesday, I'm not expecting to be taken seriously, but we never know. Maybe I will get lucky and he or she will really understand that I can't work, even though I wish I could. I loved my job, but I couldn't physically do it any more. I haven't worked since March of 2010 and now all our savings are gone. Worry, stress and pain it's a vicious cycle. Hope you have a good day. Take care and thanks for friending me.

Lyrica is not for everyone!! It did not help my Fibro and it made me very hostile!! 🙁 Cymbalta didn't help either!!
All that helps me is occasionally taking a Vicodin...and bc of the idiots that abuse this drug...I'm not able to get a regular perscriptions for it 🙁 I HATE CHRONIC PAIN!!!