Hi,
I, too have Fibro. I was diagnosed in '96 or '97 with what they called Chronic Fatigue Syndrome & Immune Deficiency Disorder. I'm not sure that Fibromyalgia was even a diagnosis back then. I was diagnosed with Fibro just a few years ago with possible involvement of Lupus and/or Rheumatoid Arthritis along with the Fibro. How long have you been diagnosed?
Hi Bugs38
I was diagnosed with Fibro about 9 months ago. I have 2 cousins with Lupas and a couple family members with the fibro. I know from my experience that nothing works as of yet. I am being sent to a orthopedic cause doc is conceren of what else is wrong.I have horrible problems with my ankles and it does affect me in every way...DRIVING is a disaster most the time.So i limit to how far i do drive.
Hi,
I, too have Fibro. I was diagnosed in '96 or '97 with what they called Chronic Fatigue Syndrome & Immune Deficiency Disorder. I'm not sure that Fibromyalgia was even a diagnosis back then. I was diagnosed with Fibro just a few years ago with possible involvement of Lupus and/or Rheumatoid Arthritis along with the Fibro. How long have you been diagnosed?
Hi, I have Fibro since '92 & Chronic Fatigue. Just started on Savella, but it's too soon to tell if it's effective. Just got off of morphine which I was on for years. Glad I am off of that. I am going to try a warm water basic stretching class. ssparks
i have been diagnosed with fibro for 5 years. it started 2 years earlier with migraines. my m.d. sent me to neurologist for testing. i am unable to work and retired last year. is anyone else still trying to work or has this monster taken over your life as well.
Hi,
I, too have Fibro. I was diagnosed in '96 or '97 with what they called Chronic Fatigue Syndrome & Immune Deficiency Disorder. I'm not sure that Fibromyalgia was even a diagnosis back then. I was diagnosed with Fibro just a few years ago with possible involvement of Lupus and/or Rheumatoid Arthritis along with the Fibro. How long have you been diagnosed?
I was on savella but had to go to a different antidepressant. It seemed to work for me some but not a big difference. I hope you have better luck Are you still able to work?
Hi,
I, too have Fibro. I was diagnosed in '96 or '97 with what they called Chronic Fatigue Syndrome & Immune Deficiency Disorder. I'm not sure that Fibromyalgia was even a diagnosis back then. I was diagnosed with Fibro just a few years ago with possible involvement of Lupus and/or Rheumatoid Arthritis along with the Fibro. How long have you been diagnosed?
they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im on visrtil...all it does is knock me out doc not sure wat to do. and no im not able to work
i am in pain all the time and it is something people do not seem to understand. I get so tired. I do not want to do anything...fighting pain takes energy. I try to do one positiv thing for myself each day. I am so depressed I have run out of ideas. I hope this community will become an outlet for me. What do you guys need from it?
Hi; the most irriating part wass the first 5 years when my doctor kept telling me it was all in my head. He almost had me believing him butt I couldn't even walk how could that be in my head. Then finally 9 years ago I was diagnosed. I have the chronic fatigue also. I'm depressed all of it. But I don't take any meds. I'm afraid to touch lyrica. I have plenty of morphine for my back I may take 1 once in a while but they don't help. I get shots. In my hips. And it helps sometimes for a little while. But i'm so sore it hurts to get out of bed terribly. I notice lately even my wrists hurt. It hurts so bad sometimes I can't help but cry. And it's hard not to be depressed. I understand everyone of you. But ppl without it. Have no idea. When I first had it most drs. Didn't even bekieve it was real. Lol. Well I was just diagnosed oday with acute kidney failure also. Very low working kidneys not looking good. So. Adds to the depression. But as it is written. God doesn't give us mor that we can handle. Oh I pray for all of us. Amen. Hugs everyone
Hi; the most irriating part wass the first 5 years when my doctor kept telling me it was all in my head. He almost had me believing him butt I couldn't even walk how could that be in my head. Then finally 9 years ago I was diagnosed. I have the chronic fatigue also. I'm depressed all of it. But I don't take any meds. I'm afraid to touch lyrica. I have plenty of morphine for my back I may take 1 once in a while but they don't help. I get shots. In my hips. And it helps sometimes for a little while. But i'm so sore it hurts to get out of bed terribly. I notice lately even my wrists hurt. It hurts so bad sometimes I can't help but cry. And it's hard not to be depressed. I understand everyone of you. But ppl without it. Have no idea. When I first had it most drs. Didn't even bekieve it was real. Lol. Well I was just diagnosed oday with acute kidney failure also. Very low working kidneys not looking good. So. Adds to the depression. But as it is written. God doesn't give us mor that we can handle. Oh I pray for all of us. Amen. Hugs everyone
Connect
Connect
Like
Helpful
Hug
Hi,
I, too have Fibro. I was diagnosed in '96 or '97 with what they called Chronic Fatigue Syndrome & Immune Deficiency Disorder. I'm not sure that Fibromyalgia was even a diagnosis back then. I was diagnosed with Fibro just a few years ago with possible involvement of Lupus and/or Rheumatoid Arthritis along with the Fibro. How long have you been diagnosed?
-
Like -
Helpful -
Hug
1 ReactionHi Bugs38
I was diagnosed with Fibro about 9 months ago. I have 2 cousins with Lupas and a couple family members with the fibro. I know from my experience that nothing works as of yet. I am being sent to a orthopedic cause doc is conceren of what else is wrong.I have horrible problems with my ankles and it does affect me in every way...DRIVING is a disaster most the time.So i limit to how far i do drive.
-
Like -
Helpful -
Hug
1 ReactionHi, I have Fibro since '92 & Chronic Fatigue. Just started on Savella, but it's too soon to tell if it's effective. Just got off of morphine which I was on for years. Glad I am off of that. I am going to try a warm water basic stretching class. ssparks
-
Like -
Helpful -
Hug
1 Reactioni have been diagnosed with fibro for 5 years. it started 2 years earlier with migraines. my m.d. sent me to neurologist for testing. i am unable to work and retired last year. is anyone else still trying to work or has this monster taken over your life as well.
I was on savella but had to go to a different antidepressant. It seemed to work for me some but not a big difference. I hope you have better luck Are you still able to work?
Low-carb diet seems to work well for the pain of fibro. It does in my case.
they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im on visrtil...all it does is knock me out doc not sure wat to do. and no im not able to work
i am in pain all the time and it is something people do not seem to understand. I get so tired. I do not want to do anything...fighting pain takes energy. I try to do one positiv thing for myself each day. I am so depressed I have run out of ideas. I hope this community will become an outlet for me. What do you guys need from it?
-
Like -
Helpful -
Hug
1 ReactionHi; the most irriating part wass the first 5 years when my doctor kept telling me it was all in my head. He almost had me believing him butt I couldn't even walk how could that be in my head. Then finally 9 years ago I was diagnosed. I have the chronic fatigue also. I'm depressed all of it. But I don't take any meds. I'm afraid to touch lyrica. I have plenty of morphine for my back I may take 1 once in a while but they don't help. I get shots. In my hips. And it helps sometimes for a little while. But i'm so sore it hurts to get out of bed terribly. I notice lately even my wrists hurt. It hurts so bad sometimes I can't help but cry. And it's hard not to be depressed. I understand everyone of you. But ppl without it. Have no idea. When I first had it most drs. Didn't even bekieve it was real. Lol. Well I was just diagnosed oday with acute kidney failure also. Very low working kidneys not looking good. So. Adds to the depression. But as it is written. God doesn't give us mor that we can handle. Oh I pray for all of us. Amen. Hugs everyone
Hi; the most irriating part wass the first 5 years when my doctor kept telling me it was all in my head. He almost had me believing him butt I couldn't even walk how could that be in my head. Then finally 9 years ago I was diagnosed. I have the chronic fatigue also. I'm depressed all of it. But I don't take any meds. I'm afraid to touch lyrica. I have plenty of morphine for my back I may take 1 once in a while but they don't help. I get shots. In my hips. And it helps sometimes for a little while. But i'm so sore it hurts to get out of bed terribly. I notice lately even my wrists hurt. It hurts so bad sometimes I can't help but cry. And it's hard not to be depressed. I understand everyone of you. But ppl without it. Have no idea. When I first had it most drs. Didn't even bekieve it was real. Lol. Well I was just diagnosed oday with acute kidney failure also. Very low working kidneys not looking good. So. Adds to the depression. But as it is written. God doesn't give us mor that we can handle. Oh I pray for all of us. Amen. Hugs everyone