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Gastroparesis with severe symptoms!

Digestive Health | Last Active: Nov 30, 2023 | Replies (437)

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@shimmerpixie

<p>I was diagnosed with IBS when I was 18. I'm now 30. Early in 2011, I saw a new GI doc for unexplained feelings of fullness after eating a very small amount of food, nausea and vomiting and severe pain- all revolving around eating. He ordered a gastric emptying studying and told me I had "mild delayed emptying," which he classified as "mild gastroparesis" on my chart. He gave me Zofran 4 mg to take as needed and hyosciamine for stomach spasms. At the beginning of this year, lost 15 pounds in 2 months due to the worsening of these symptoms. I've had many sleepless nights with a horribly painful distended stomach- last night being one of the worst- and I'm on 3 nausea medications- tigin, emend and marinol- and heavy doses of all 3. I was in the hospital in February for 2 weeks with an NG tube and sent home with the medications I mentioned. I was severely dehydrated when admitted, as I'm not always able to tolerate liquids either. My GI doc requested a psych consult and I was grilled by a psychiatrist and his nurse as soon as I had a bed and fluids had been started. The outcome of this was that I did not need additional psychological intervention. (I see a therapist every 2 weeks b/c of this and other chronic pain I deal with- Fibro and osteoarthritis). So here is where I'm at: I was supposed to get in with a doctor who has access to a trial drug, but I was denied access to the program because my scan only shows mild delayed emptying. Yet my symptoms are of someone with a very severe form of it. The psychiatrist determined it's not psychological. So what am I supposed to do?? The only reason I'm gaining weight is due to the marinol, which increases my appetite but then I have to deal with the pain and nausea of eating. I don't vomit as much, because of the drugs, but I still feel nauseated after eating (even on an full liquid diet). I've kept food diaries for years and tried everything. I tried gluten-free. I eliminated "toxic" chemicals (those found in diet pop), caffeine- you name it, I've tried it BEFORE this took over my llfe in January and I'm continuing to eat as tolerated but I'm in hell. Does anyone else have a gastric emptying test that shows mild delay, yet you have severe symptoms? If so, I would love to hear from you. I hate the marinol b/c it doesn't help much with the nausea and makes me want to eat, after which I feel horrible. Please please tell me there is someone like me out there, and that help is available. Any and all replies are appreciated. <br />~Stephanie~ <br />P.S. I was in the ER last twice last week due to dehydration and pain that is unbelievable and off the charts. I don't understand :(</p>

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Replies to "I was diagnosed with IBS when I was 18. I'm now 30. Early in 2011, I..."

I am in so much pain and no one seems to find the reason why. I am in and out of the doctors offices and hospitals with no answer. I was first being treated for UTI and was on Keflex for 2 weeks. After that I started getting pain in the right side of my kidneys. Went to the hospital and they did a CT scan and lab work and everything was ok. I am having EXTREME upper abdominal pain that radiates to my back. I lost 17 pounds in two weeks. I can't eat without it going right through me. I believe I have what is called gastroparesis

I was diagnosed with mild gastroparesis ( they're just guessing) , but my symptoms are very severe. My gallbladder was removed in October of 2017 and 3 days later I became ill . I have been sick ever since... and it is now January of 2019. I have chronic and severe nausea everyday, lack of appetite, bloating and distention , stomach cramps, etc. I have had every test done that they can do and they still haven't figured out exactly what's wrong with me. In the meantime I suffer , and suffer greatly. They have tried every medication on me except for one , which my doctor is trying to get for me as we speak. If anyone has had their gallbladder out and then continue to have chronic nausea and GI issues PLEASE let me know what you have done to heal yourself of it

Hi, @lell, this is Mamacita, from the Adults on the Autism Spectrum group. Years ago, when my gastroeneterologist said that I "might" have gastroparesis, my cousin, a Biologist, gave me an exercise to do where I "suck in" my abdomen, and release. Repeat. As many as you can do comfortably. And throughout the day. About this time I started eating gluten free, all except for one small yogurt each day. This progressed to Paleo, and now finally, Lazy Keto. I also have four gummy probiotics per day. I eat mostly vegetables and protein, maybe a handful of strawberries or blueberries. I also have IBS and Diverticulitis, along with severe food allergies. However, with the measures taken that I have mentioned, I have no symptoms from any of those conditions. Try to find a really good specialist for a second opinion. Who knows, you might like that doctor even more. What I have mentioned works for me, and many others. It may or may not work for you. I wish you good success on the path to health in this new year!

Mamacita

I was diagnosed , with Gastroparsis a couple years back, also have Barrett’s disease & 2 ulcers in my esophagus , that tend to bleed & drops my hemoglobin To dangerous levels .
Has anyone else have any of these problems, that can give me some dietary tips ?

Hi @sickirishlass,

I’d like to add my welcome, and also let you know that I moved your message and combined it with this existing discussion. As @fourof5zs mentioned, I thought it would be beneficial for you to be introduced to the many members who are discussing much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Feel free to post your concerns and tag members in these discussions as well, about Barett’s esophagus:

– Barrett’s esophagus https://connect.mayoclinic.org/discussion/barretts-esophagus-1/
– Barrett's esophagus to Esophageal cancer https://connect.mayoclinic.org/discussion/barretts-esophagus-to-esophageal-cancer/

May I ask if you could share a few more details, @sickirishlass? How are you coping and managing your symptoms at present?

I put myself on a liquid/soft food diet, & still getting Severe nausea and upset even throwing up. My hemoglobin keeps going low because the ulcers in my esophagus tend to bleed , my hemoglobin went to 4.3 at the beginning of the month while getting blood I had a heart attack . All the gastrologist I saw tell me there’s not much more they can do for me. I am on a lot of medications. I will be going to the Mayo Clinic on Tuesday & hopefully I’ll get some answers. I have a constant tummy-ache , with bloating and nausea ,

I am a 39 year old female that was diagnosed with Gastroparesis last year after a decade of "issues". It never bothered me before this past year but the symptoms have drastically worsened. I am seeing several GI Specialists in my area and one at the UW Wisconsin Hospital in Madison. They have had no real answers for me in regards to treatment, management, dietary, etc... I suffer from severe constipation with excessive flatulence (farting), bloating, pain and distention. Even Miralax and Milk of Magnesia daily hasn't helped. It has taken over my life. I am a very active outdoors woman and have little to NO energy now. I don't have the vomiting like most. Just the other symptoms of constipation listed above. I also developed some Hemmorrhoids which have been difficult to manage as well.

Since I haven't had much help or testing done this past year, I am looking to going to Mayo Clinic in Rochester, MN and was curious to here about others opinions and experiences with the specialists there and in general of how you're living with this disease and the complications and health issues that accompany it. It has greatly affected my mental health but go to therapy weekly.

Thank you anyone who might be able to offer advice or suggestions! Much love to all of you going through this or similar health issues.

I was just Admitted thru ER my hemoglobin dropped from 9.0on Monday to 5.6 today, giving me 2 units so I can make it to Mayo on Tues . I can tell my ulcer is bleeding. OH BOY