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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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Thank you so much for the information. I was diagnosed with Gastroparesis 2 weeks after my surgery, so I know what caused it. The vegas nerve is damaged. If I don't eat I get nauseous and if I do eat about 10 to 15 minutes after I vomit and have dry heaves and the diarrhea starts. I get so worn out I have to lie down and rest. I have no strength anymore and I'm still losing weight. I applied for a Gastroparesis study but because during my surgery the doctor performed a fundoplication wrap (which he explained that part of my stomach was wrapped around the esophagus) I didn't qualify. I live in New York. I'm sure one of my gastroenterologist's can let me know if I qualify for a pacemaker and if I do where I can get one. I'm so glad you found some help. Thanks again.
I also had a Nissen fundiplication, pylori plasti and the gastric pacemaker all done in the same surgery. I'm sure you could have the gastric pacemaker put in also. Good luck & I hope you find a dr that will do it for you. I had to drive quite a ways away to find a dr to do it but it was so worth it.
Thank you, I'll start looking today.
the constant nausea, my husband is going to have a cochlear implant at vanderbilt in nashville tn next week he is almost deaf and it is so frustrating that i will be unable to go with him for it but my son and daughter in law will be with him after this is done and is hopefully successful i am going to tackle this gastroparesis and my first plan is to try to go to mayo
Hello.<br>After suffering 2 long and horrible years, I no longer have gastroparesis.<br>I voluntarily stopped all medications for the GP and severe psoriatic<br>arthritis after multiple complications from side effects landed me in the<br>hospital numerous times from the 12 medications I was taking.<br>I began juicing with ginger and greens religiously, became a vegetarian and<br>no longer have any symptoms of these two dreadful diseases.<br>I wish all those well who are suffering and pray they too can be healed.<br>Living a plant-based lifestyle worked for me.<br><br>Terra<br><br>
Glad you are doing well. I am just starting to give up gluten and dairy.
Welcome @clemlaa. Are you finding it a challenge to give up gluten and dairy?
I have osteoporosis which has gotten worse over the last five years. Two years ago I noticed when I ate to much, such as Thanksgiving dinner about an hour later I would have a pain above my left eye, pain in my left collar bone and indigestion. This was very infrequent. Since April I now have GERD which causes hoarseness, mucus and clearing of my throat. I have been going to a gastroenterologist the last two months and mentioned I thought my vagus nerve was causing this. He said no and gave me medication for GERD. This has not helped. I have read all the information on gastropareses and know this is what I have. How can I convince him?
I have given up trying to explain that I have Crohn's, GERD, diabetes, and a lot of pain. If my family had arthritis I had the same problem I am told. All was false diagnosis. I've been telling different doctors that I was cured in 1960, but because it was not drugs that couldn't be correct. Now I learned all about GERD, diabetes, Crohn's, and memory all controlled by the same source. My treatment in 1960 by an Italian Doctor was shots of: Methionine, B-12, and vitamin K. A two week treatment and I avoided surgery to remove part of my inflamed intestines do to severe pain. Last year from a neck pain I solved all my problems. I noticed eating bread and sugar increased my pain but eating vegetables decreased the pain. I changed my diet per a friend suggestion and the following happened. I was able to stop all my bodies pain including neck, hands, lower back, and knees area intermittent pain. Also by it self GERD stopped. I had it for over 50 years but I knew from the Italian treatment it stopped for 3 years. My diagnosis is the liver since Methionine cleanse the Free Radicals of the liver and I am sure it does other things. I located some liver supplement pills but it helped until I ate the wrong food again. Now I have GERD completely under control and so my intestines and memory. Also my diabetes reversed to normal. I removed bread and any flour products, removed all carbohydrates, soft drinks or any thing with preservatives. I make fresh smoothie drinks fruits and raw vegetables and it controls all my pain within one hour. I eat what I shouldn't and get the pain activated and Neuropathy, but vegetables specially raw vegetables is better than any drug medicines. Why doctors keep it secret? The Internet is full of good information about what I am talking, but no one wants to hear specially when they hear about that bread is the source of many diseases. Sugar also. My neck pain have been my trainer and learning even to pay attention to fresh fruit sugars. So far so good since after many blood test and Ct Scan I was told by my doctor that I figured out there is no medication for me. I also lowered my blood pressure to normal and healed all my ulcers that was on my esophagus from acid stomach. I wished I knew all of these 50 years ago and not suffer from GERD like I did. Try what I am saying it will cure you in few days. I hope it will help you.
Hello @2thnkpztv,
Welcome to Connect; I'm sorry that you are experiencing these symptoms, but also glad to know that you are being an advocate for your health. You will notice that I moved your discussion to this group within Digestive Health, as I thought you might like to connect with others living with gastroparesis.
I'm also tagging @gingerlyn, @clemlaa, @citygirlannie, @margieg, @sherry8034, @katmandoo, and @faycarole, with the hope that they can share their experiences with you; @mrsdeecee, do you have any suggestions for @2thnkpztv with regards to the hoarseness due to GERD?
Here is some information about treating gastroparesis from Mayo Clinic http://mayocl.in/2gc3xYu.
@2thnkpztv, have you considered getting a second opinion? Since the medication is not working, how are you managing your symptoms?