Gastroparesis with severe symptoms!

Hi everybody,

I'd like to invite you to view this recently published post on the Connect "Gastroenterology & GI Surgery” Page. Madelynn Strong, clinical dietitian at Mayo Clinic, recommends strategies and foods that might help relieve symptoms of gastroparesis, and speed up gastric emptying.
Gastroparesis Diet Guidelines https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed/gastroparesis-diet-guidelines-1/

boil anise seeds , 2 ts ... :-)..

I was just diagnosed with gastroparisis a few days ago. My symptoms include: chest pain/heaviness/tightness, shortness of breath, every scent causes a trigger (newer symptom) stomach pain, nausea, vomiting, off balance, fatigue, loss of appetite, diarrhea, constipation, bloating/gas, body aches, heartburn, lightheadedness, right side of neck and shoulder pain, and a feeling of choking. I have gone to many doctors (within 1 year and 8 months now). The breathing part is the most that’s bothering me. I’m extremely stressed, depressed, miserable, anxious, and scared. I don’t like these feelings, I have lost interest in most things in life. I don’t even wanna get out of bed in the morning. Does anyone have breathing problems with this?...I’m still figuring this out, my doctor thinks it’s acid reflux (chest problems). I sure could use some support. Thanks.

See an allergy/asthma doctor for some medicine to help with the breathing problems. Then, make an appointment at the Mayo Clinic. They are #1 in gastroenterology. You might also want to try Phillips Milk of Magnesia for the constipation. My doctor said I could take as much as I want, and I use 4 T every 2d or 3rd day.

I have mild gastroparesis and have a lot of pain across my stomach and back does anyone else have this I can't take erythromycin and will not take raglan I'm taking tramadol for the pain may suggestions

Hi @cookiegnias I moved your post to this existing thread on Gastroparesis so you can read up on what others have said about living with this condition.

I wanted to tag fellow Connect members, @dorifg @kbelter @darlia @nanny23 @katmandoo @jlfisher56 @delicht @danybegood1 @robatk17 and @citygirlannie as well as @pdilly and @doodle75bug, as they have mentioned gastroparesis in the past and may have thoughts on medications.

Back to you @cookiegnias, you mentioned two medications that you are unable to take. Did you have adverse reactions to these medications? How long have you been living with this condition?

My diagnosis was moderate Gastroparesis about a year or so ago. I don’t suffer the horrible pain so many of you have to deal with so I don’t know if my comments will help anyone or not. (I had no idea that Gastroparesis caused headaches and breathing problems and many of those other symptoms listed on this thread.)
I have the severe stomach pains with diarrhea and vomiting AT THE SAME TIME when it flares up. It usually lasts 1 1/2 to 3 hours. And it usually only happens once or twice a month.
To manage my condition I eat practically no fiber, one dose of miralax a day, two domperidone tablets a day, chew every bite a bajillion times, and eat about 8-10 times a day. Not really meals. More like snacks.
I work full time. I’ve only had to miss work a couple of times since I learned how to manage things.
The silver lining of Gastroparesis for me has been the weight loss of about 35 pounds that resulted in getting me off type 2 diabetes and blood pressure meds! And amazingly my A1c has remained at 5.7 even though I eat so many more carbs and so little fiber now!
God bless all of you who suffer with severe Gastroparesis! I cannot imagine how difficult that must be.

I'm sort-of new, too. I spent most of 2018 in and out of the ER and in-patient with intractable vomiting, nausea, stomach pain, one round of colitis and so on and so forth. I had an upper endoscopy and colonoscopy, both with biopsies, that really didn't show anything, in May of last year, so they said then that maybe I had Gastroparesis but they couldn't confirm the diagnosis because I have an implanted morphine pump for an injury that occurred after I'd already had a fusion on my lower back. Things had quieted down at that point, so they saw no reason to go any further. The quiet period lasted about 4 months and I was back in the hospital in November, another upper endoscopy and this time I was told I had gastritis. I was nauseous all through the holidays then started vomiting again right after we got back from visiting our grandkids. A week at home and finally and ambulance ride to the hospital because I was in so much pain I couldn't make it to the car, 2 nights in the hospital and they've finally decided it's gastroparesis. The Gastroenterologist I saw in the hospital, who I'll follow up with in his office, started me on Reglan, but my family doc asked me to only take it as needed as she really worried about the side affects. I've been following the diet for about a week and a half now and my stomach is happier. I've lost 35 pounds in the last year...not that I didn't need to, but there are better ways to do it. Now I just need to figure out what I can and can't eat.

My family doctor also wants me to try and incorporate the low FODMAP diet, but the two diets almost seem impossible to combine. I think I'd better conquer on at a time, unless someone has any tips for doing both at once? I'll take any advice I can get on getting through this I can get.
Thanks, and all the best to everyone else going through this,
Tracy

I was diagnosed with gastroparesis along with functional dyspepsia and gastro accommodation issues about 2 months ago. I tried erythromycin and reglan both and could not tolerate the side effects. I take 40 mg of Nexium, which helps the reflux and admoninal pain. I’ve lost about 25 lbs in the past few months and really eat only gluten free and lactose free as much as possible. I was told to follow the fodmap and it did help break my severe cycle of nausea I was having. My gastro Dr also recommended buspar to try to help calm things down in my epigastric region. Anyone else ever tried buspar? It’s actually an anti anxiety medication. Thanks!!

No but sounds little like me since i had all my large intestine removed .and on anixty med. May gey mine changed if yours works. Let me know