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Gastroparesis with severe symptoms!

Digestive Health | Last Active: Nov 30, 2023 | Replies (437)

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@pdilly

My diagnosis was moderate Gastroparesis about a year or so ago. I don’t suffer the horrible pain so many of you have to deal with so I don’t know if my comments will help anyone or not. (I had no idea that Gastroparesis caused headaches and breathing problems and many of those other symptoms listed on this thread.)
I have the severe stomach pains with diarrhea and vomiting AT THE SAME TIME when it flares up. It usually lasts 1 1/2 to 3 hours. And it usually only happens once or twice a month.
To manage my condition I eat practically no fiber, one dose of miralax a day, two domperidone tablets a day, chew every bite a bajillion times, and eat about 8-10 times a day. Not really meals. More like snacks.
I work full time. I’ve only had to miss work a couple of times since I learned how to manage things.
The silver lining of Gastroparesis for me has been the weight loss of about 35 pounds that resulted in getting me off type 2 diabetes and blood pressure meds! And amazingly my A1c has remained at 5.7 even though I eat so many more carbs and so little fiber now!
God bless all of you who suffer with severe Gastroparesis! I cannot imagine how difficult that must be.

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Replies to "My diagnosis was moderate Gastroparesis about a year or so ago. I don’t suffer the horrible..."

I don't know if you will read this as all the posts are so spread out in time I think the site loses a lot. Have you had side effects from miralax or domperidone? I've considered both. Do you know if miralax is commonly recommended for gastroparesis ? The only time I tried it I had watery mixed with formed stool.

Years ago I had severe cramping and diarrea suddenly for a few hr. and thought it was probably an allergic reaction to sulfites in seafood or salad bars, which are illegal to add now. Hope restraunts are following the law. Not sure that was the cause though.
Glad you are better.