60 days ago my life was normal. I got a pretty bad cold and was coughing coughing. Then I started with upper abdominal pain. Then two days later I woke up with a bump on my right temple. I was very dizzy and weak. The dew some labs and my ESR was 30 and diagnosed me with Temporal arteritis. That dust day they gave me 180 mg of Prednisone. They told me to take 60 mg a day for 7 days. However, the side effects were so bad and I had increasing abdominal and spleen pain. So I took 60 mg for three days then backed off to 40 for 5 says, 30 for 5 days, 20 for three days 10 for 3 days. During this time the abdominal pain got so much worse. I kept saying my spleen and liver were killing me. They did a CT scan of the abdomen and my cyst was stable at 9+ cm. Spleen siZe was not addressed. IAM at the.point I can only eat 1.5 cups of food twice a day. I have lost so much weight. I decided that I would rather be blind than take.prednisone. The doctor said it was anxiety and prescribed an antidepressant. It is not that. It is abdominal pain and spleen pain. I go in for.an upper and.lower GI on Wednesday. However, this pain is crazy. I have a history of GERD but know it's not that either. My Splenic cyst has never been addressed. I have also had pain under.my armpits. White count varied between 11 and 15 but they attribute to Prednisone.
Hello @michellern
I can certainly understand your concern and wanting some answers for this pain. Perhaps the upper and lower GI on Wednesday will help to diagnose this pain problem.
If you still have concerns, however, I would suggest a visit to a medical facility with a multidisciplinary approach such as a university medical school or a Mayo facility. Sometimes a second opinion at one of these types of facilities can help patients get answers to difficult to diagnose problems.
If you are comfortable doing so, will you provide an update after you get your results of your tests on Wednesday?