Thank you for getting back to me. My sister was originally diagnosed with ALS in 2000 at the University of Pa. Hospital. She was later, 2010 taken out of the ALS diagnosis but still no diagnosis for what was wrong. She was finally diagnosed by Dr. Ogue, neurologist, at Shands Jacksonville with Stiff Man Syndrome and Dystonia. She brought her old EMG from 2010 and was diagnosed on the spot with SPS at Shands in October 2017. She received 30 Botox injections via EMG for Dystonia symptoms over a month ago. This appears to have made her symptoms worse. She is in a tremendous amount of pain. She is taking Valium and Baclofen now as well. Although we are grateful to the neurologist who finally diagnosed her, we are looking for another specialized neurologist to treat her long term for both SPS. We know there is an excellent neurology clinic at the Mayo in Jacksonville but they are not taking any new patients as hey are at capacity with no waiting list either. We are not sure where to turn. We appreciate any help and information you can provide. Thank you, Marita Kelly