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Hi I’m a 39 year old woman and I’ve got ineffective esophageal motility disorder, with spasms. My manometry showed 90% failed swallows. I can eat certain things like liquid drinks, smoothies, puréed soups and some solid foods like meltable solids such as shortbread cookies, cheetoh puffs, crackers,frozen yogurt, yogurt and basically anything you can give a baby. My doctors have told me there’s nothing they can do for me, that I’ve got to learn to deal and a nutritionist won’t be helpful. Ugh. They’ve been zero help. All they did was put me on Omeprazole and say it won’t get better and just hope it doesn’t get worse. So I’m looking for food ideas from others with this issue. I think from googling on my own I’ve realized maybe I can do mechanical soft, but I’m scared as when this began my swallow reflex would stop when something solid would get stuck and I don’t want to go backwards since I have to work full time and maintain my energy. I’ve been suffering with this for two years and lost a violent amount Of weight at first, so much so that my gall bladder went bad and had it removed in June. Ugh. It’s so hard “living” like this and these food holidays don’t help. Ugh. I’m tired of feeding my body liquid sugar and junk food because it goes down easy. I wish I could just bake a chicken breast and some broccoli. I’ve tried pureeing my food but I wanna vomit with puréed meat. Ugh. Any assistance with ideas for more solid/soft food that goes down for those with esophageal motility disorders would be beyond appreciated. Thank you.
Replies to "Hi I’m a 39 year old woman and I’ve got ineffective esophageal motility disorder, with spasms...."
Yes I have tried chewing gum it didn't help & took speech therapy too but with speech therapy I could not keep up because of the very hard time trying to speak with all the saliva in my mouth & that was in 2018 but in 2019 the saliva even got worse with the saliva building up in my mouth & stays there & then pours out if I don't cover my mouth with a towel or kitchen paper & trying to speak with a mouthful of water is something else. I have tried mostly because every trick there is but I know that a dilation to the ecophagus is the way. I watched the self dilation video too but don't know to get the dilator...does anyone know here in Jersey city NJ ?? I would try it since I can't get a doctor cause of the virus problem...
I have exactly the same as you , failed 90% swallows. I have been put on Amitriptyline and azrthmycin and it is improving slowly. I wonder how you are getting on now ? I know this is an old post
My brother had same issues and saw may specialists from ENT to Gastroenterologists , etc … had many tests . Lived off soup and smoothies and ice cream for 2 years. He’s been put on low dose prednisone recently and it’s helping him as he can handle pasta and veggies cooked well and tiny amounts of bread as long as it’s dipped in a sauce or olive oil. This has been a long journey and it’s not over yet .
I have 7 Gastro issues diagnosed and live in chronic conditions daily and nightly 10 yrs . It’s horrendous. Too much to get into but no one can help me . Best wishes on your journey.
You definitely need to buy lots of vitamins and put in your smoothies. I think they saved me until I had the Poem.
God bless you!!
I suffer from aperastalsis of the esophagus as well as achalasia. Ive had a Heller Myotomy but unfortunately I still have issues. My issues is violent burping and hiccuping most of the day and vomiting part of every meal I eat. I even vomit water. Ive been on every type of medication you can think of including anti-anxiety and anti-depressants. Nothing worked. Does anyone else suffer from vomiting. I actually went to Minnesota to the Mayo Clinic and was advised I may have a mental condition that is causing me to swallow air. I was advised to see a therapist and practice diaphragmatic breathing
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Yes I do need a endoscopy done but did have it done in March 2020 & was suppose to go back end of April but the appointment was cancelled because of the virus issue so I have to wait till ?? In 2015 I was diagnosed with dysplasia then with excess saliva in 2017 & got treatment with Botox injections on my face/jaw for the excess saliva But it only got worse & started getting a lot of saliva pouring from mouth since now from the end 2019 . I found out by the internet that the ecophagus got narrowed & not by a doctor with a endoscopy. The vitamins I take is to keep my body strong because I am not young being 82 years old. This problem has also effected my speech too . Cant make any words speaking that anyone can understand... But keep looking forward to get a ecophagus dilation here in Jersey city NJ. Does anyone know where I could get it without any hold ups due this virus. Thanks