Hi @lina2017, welcome to Connect.
I moved your message to the Hypertrophic Cardiomyopathy (HCM) group on Connect. I encourage to read through the various discussions in the group where you'll meet many people who share your husband's experience.

- Hypertrophic Cardiomyopathy (HCM) group http://mayocl.in/2eJdqOc

I'd like to tag specifically @cynaburst @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @FrancineFafard @lisa7 @lucindag @23273333 @li @margie11 @fishinglady @lisa7 @lisab62 @debcrawford @onewholovesrock @1949 @mbcube who can tell you more about finding a good hospital, valve repair and/or symptoms post myectomy.

Lina, what part of the world do you live in?

I traveled to Mayo for mine (as most of us had to). Most doctors think when looking at an echo that its related to Mitral Valve prolapse. It sometimes caused by the septum being so big it interferes with the valves function. So DO see an expert. Here is a link to doctors http://www.4hcm.org/coe

I agree with what everyone else has said. It is really imperative to go to a center that is expert on dealing with HCM. I traveled to Mayo Clinic in Minnesota from California in order to have mine. Valve repair is sometimes not necessary at all after myectomy and if it is, they can both be done simultaneously. Would you be able and willing to travel for surgery? That would be your best bet.

My father had a septal myectomy and a triple bypass, done at the same time, 5 years ago. His doctors told him the exact same thing that "mcube" said here, that the abnormal thickness of the septal wall was pressing against the mitral valve and preventing it from working properly. Once the surgeon reduced the thickness of the wall, the mitral valve worked fine. I agree with others here and recommend that your husband seek treatment at a hospital that has a high volume of HCM patients. Wishing you and your husband all the best.

I was able to schedule my surgery and evaluation on the same visit. If you already know that you will likely need surgery, they can schedule you for testing for the first day or two of your visit, and surgery shortly after as long as they agree that surgery is warranted. You can call this number for cardiovascular scheduling at Mayo Clinic Rochester, and they can help you figure it out: 507-284-3994. I waited a few months for mine, but I wanted a specific surgeon and cardiologist and needed to make family arrangements.

It you want to read about my myectomy you can read my blog that I wrote at the time at:

http://www.cynthiassummeradventure.blogspot.com

Also, my current blog has a page of resources for people undergoing myectomy:
https://hcmbeat.com/resources/resources-for-patients-about-myectomy/
Best of luck to you.

we got an appointment with dr Zayed at mayo clinic .but i coudnt find any reviews about him .who was your surgeon ?

Rochester MN .i think it is DR Said .I asked for dr Scaff ..Do you thibk we have to go for a consultation first and then for surgery? .Beacuse they asked us we can do both in one trip.

You can do both in one trip. It is up to you. I did both in one trip and scheduled it that way on purpose.

I already had an ICD before the myectomy so that didn't change anything. The surgery shouldn't require you to have one unless you already had an alcohol ablation. The only reason for an ICD would be if you have enough risk factors which make you at risk for sudden death.

Then it must be this doctor:
http://www.mayoclinic.org/biographies/said-sameh-m-m-d/bio-20149338
I do not know him, but I am sure Mayo would not let him operate unless he was properly trained. I know that they were training someone else do myectomy surgery as the demand is increasing.

please help.I went with my husband today to see a local surgeon just for consultation.My husband has Hcm with SAM septal.He told us he has the thickness all over and if he do the septal myectomy he will ended up for transplantaion in 5 yrs .That freaked me out .
Is it extended myectomy for those who having this type of thickness?
i saw from your post that you had an extended myectomy .