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Is anyone taking Ibrutinib (Imbruvica)?
Blood Cancers & Disorders | Last Active: Jun 21 12:01pm | Replies (21)Comment receiving replies
@myla031, I'm tagging fellow members who have experience with ibrutinib, sold under the brand name Imbruvica, like @gg17 @northbay @bullwinkle @profrich @ckeys @gmack and @lel who may be able to share their experiences. You may also be interested in this discussion:
- I have very difficult muscle twitches on imbruvica. Any advice? https://connect.mayoclinic.org/discussion/i-have-very-difficult-muscle-twitches-on-imbruvica-any-advice/
Myla, when will you start the new treatment?
Replies to "@myla031, I'm tagging fellow members who have experience with ibrutinib, sold under the brand name Imbruvica,..."
With mantel cell. P53. I was in remission for 6 months with rituxan and bendemustin. Now it’s back with a vengeance throughout my body. Tumor in my left eye lid and right lobe brain. So I’m on imbruvica to hope to dissolve the brain tumor so I can go into better clinical trials. At city of hope Duarte with specialist tycil Phillips. This is my 7 day of 280 daily oral dose and so far no side effects. Just feel totally awful and weird and spacey with the brain tumor. I’ll be tested next week. If my lymphocytes go up there might be hope. Sigh.
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My oncologist is trying to put me on their trial of the Acalabrutinib but if don't qualify she'll start me with Ibrutinib. So, I'm still waiting. But I read that Ibrutinib have lots of side effect . So I don't know what to do.