Christy, while we wait for others to join the discussion, can you share more about your cancer experience? After the complete thyroidectomy, what did the subsequent two surgeries consist of? How are you doing today?
The other neck surgeries I had were for complete next dissection's to remove several lymph nodes, then in my sternal notch area. I've had 2 Pet scans, many CT and ultrasound scans since 2017. My MTC is sporadic and is slow growing.
Welcome @alijua, I moved your message to this discussion about medullary thyroid cancer so you can meet @christys@lindameyerson and @lbhoffman who also have medullary thyroid cancer.
Ali, do you have other family members who have had cancer? Have you had to have any cancer treatment after surgery?
Welcome @alijua, I moved your message to this discussion about medullary thyroid cancer so you can meet @christys@lindameyerson and @lbhoffman who also have medullary thyroid cancer.
Ali, do you have other family members who have had cancer? Have you had to have any cancer treatment after surgery?
My 80 yr old uncle had medullary thyroid cancer and that is how we found out about the MEN2A. I have not had any treatment after my surgery in April of this year. My 15 yr old tested positive for the gene mutation and Wednesday she had surgery to remove her thyroid.
My 80 yr old uncle had medullary thyroid cancer and that is how we found out about the MEN2A. I have not had any treatment after my surgery in April of this year. My 15 yr old tested positive for the gene mutation and Wednesday she had surgery to remove her thyroid.
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Hi @christys, welcome to the group. @lindameyerson and @lbhoffman also have experience with medullary thyroid cancer.
Christy, while we wait for others to join the discussion, can you share more about your cancer experience? After the complete thyroidectomy, what did the subsequent two surgeries consist of? How are you doing today?
The other neck surgeries I had were for complete next dissection's to remove several lymph nodes, then in my sternal notch area. I've had 2 Pet scans, many CT and ultrasound scans since 2017. My MTC is sporadic and is slow growing.
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1 ReactionDiagnosed this year with MEN2A. Had thyroid removed in April 2021. Medullary thyroid cancer and primary hyperparathyroidism.
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1 ReactionWelcome @alijua, I moved your message to this discussion about medullary thyroid cancer so you can meet @christys @lindameyerson and @lbhoffman who also have medullary thyroid cancer.
Ali, do you have other family members who have had cancer? Have you had to have any cancer treatment after surgery?
Hi Christy
I was diagnosed with sporadic MTC in March of 2017. Three surgeries that year, my cancer is still active.
My 80 yr old uncle had medullary thyroid cancer and that is how we found out about the MEN2A. I have not had any treatment after my surgery in April of this year. My 15 yr old tested positive for the gene mutation and Wednesday she had surgery to remove her thyroid.
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2 ReactionsI cannot believe this your uncle lived 80 years with MTC! there is hope!
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1 ReactionMy husband has MTC it's not RET they say it's KRAS G12R. We find out more tomorrow as it has metastasized to his liver now.
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1 ReactionYes gives me hope too. At 80 his cancer had spread so I feel very blessed to have caught mine in time
Hi @curlywurly, have you had other treatments in addition to surgery?