@kamama94. @alwayshope No direct advice for anyone, but find Kamama's experience to be inspiring. Going through some stuff next couple of weeks, and when I get down, I'll just say, "If Kamama can do it, so can I!" Hang in there, everybody! I'll be with you all in spirit.
@transplant2017 Well, that sounds like quite the experience! I will not pry but hope there was some kind of reckoning when the injury came to light. I hope the injury was not to both kidneys. To ease the burden on your kidneys, you may ask your team about switching to a kidney-friendly diet [low protein, low potassium, low phosphorus] now. Some people have been able to help reverse a downward trend in kidney function, this way. @kamama94 who posts in this group, did a lot of research on food plans for kidney patients. By modifying his food plan and lifestyle, my husband was able to ward off dialysis for 5 years, so I'll bet you can tackle this, too!
Ginger
Hi, @transplant217, Like probably most, I was very alarmed initially with my CKD diagnosis and began researching sites for help. Unfortunately, my nephrologist has provided such little guidance that I will be seeing a new one next month. In the meantime, a dietitian proved very helpful as has tracking my kidney lab scores since the diagnosis.
I also salute @kamama94 for her kidney friendly recipes shared on this forum and am grateful for Davita.com as another trusted source which provides recipes that can be modified as needed for each individual.
While I've improved my eGFR scores through strict diet, exercise, and addressing any lab values out-of-kelter on my own, like you, my increased creatinine scores are my biggest concern. So I really appreciated your posing your question. I am hoping the new nephrologist will offer more help with my rapidly changing creatinine levels.
Ginger's, @gingerw, response to you about changes made to her husband's diet plan are so encouraging. Finding this patient group early in my diagnosis has brought me so much encouragement. I'm thankful for the research and reporting on kidney disease and only wish more were made aware and much earlier of the importance of kidney function in our lives.
I think staying very pro-active with questions and our own research will help keep us away from dialysis much longer. Thanks for your posts and wishing all on this CKD path the very best going forward.
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@kamama94. @alwayshope No direct advice for anyone, but find Kamama's experience to be inspiring. Going through some stuff next couple of weeks, and when I get down, I'll just say, "If Kamama can do it, so can I!" Hang in there, everybody! I'll be with you all in spirit.
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3 Reactions@trishanna, sending you positive vibes and gentle hugs! We care about you!
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2 ReactionsHi, @transplant217, Like probably most, I was very alarmed initially with my CKD diagnosis and began researching sites for help. Unfortunately, my nephrologist has provided such little guidance that I will be seeing a new one next month. In the meantime, a dietitian proved very helpful as has tracking my kidney lab scores since the diagnosis.
I also salute @kamama94 for her kidney friendly recipes shared on this forum and am grateful for Davita.com as another trusted source which provides recipes that can be modified as needed for each individual.
While I've improved my eGFR scores through strict diet, exercise, and addressing any lab values out-of-kelter on my own, like you, my increased creatinine scores are my biggest concern. So I really appreciated your posing your question. I am hoping the new nephrologist will offer more help with my rapidly changing creatinine levels.
Ginger's, @gingerw, response to you about changes made to her husband's diet plan are so encouraging. Finding this patient group early in my diagnosis has brought me so much encouragement. I'm thankful for the research and reporting on kidney disease and only wish more were made aware and much earlier of the importance of kidney function in our lives.
I think staying very pro-active with questions and our own research will help keep us away from dialysis much longer. Thanks for your posts and wishing all on this CKD path the very best going forward.
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