COVID vaccines and neuropathy

I am concerned about getting the vaccine so everyone please keep us posted so we know what to expect. I know everyone is different. I wish everyone the best.
God bless
Genie

@tigreyes2004, I don't have any medical background or training and as a patient myself I can only share my personal experience. Have you seen the following discussions? They might be able to help you find something that will give you some relief for the pain.

- Alternatives for pain management: https://connect.mayoclinic.org/discussion/alternatives-for-pain-management/
- Different OTC for neuropathy: https://connect.mayoclinic.org/discussion/different-otc-for-neuropathy/
- Neuropathy Medications: https://connect.mayoclinic.org/discussion/neuropathy-medications/
- Supplement recommendations: What can help neuropathy?: https://connect.mayoclinic.org/discussion/supplement-recommendations-can-help/

...am hoping to find out Tuesday from internet appointment with Neurologist if the worsening of my peripheral neuropathy and inside trembling etc. getting really ba has anything to do with recent injections over past few months of dental numbing agents lidocaine and epinephrine.... so not a good idea for me to have the Covid vaccine til I find out: but hasn't been offered yet.. I am willing to take a chance but don't want to not get vaccinated, get Covid and spread to an innocent person; however, just reading that having the vaccine does not prevent someone from getting it and even passing it on, but that it will not have such serious consequences if you have had the vaccine... J.

Hi Lacey, I am hoping you get some answers from your neurologist. Please keep us informed as I am considering some dental work which would necessitate getting those numbing shots. I did have some work done 11/2 yrs. ago and did not have any increase in my SFN symptoms at that time so hope that’s true for you also. Helen

The morning meds are in a small cup by my bathroom sink, but I sometimes just overlook them. I have a 7 pm alarm for my second morphine, and I don't very often turn it off, then forget to take it. If I'm in the middle of doing something, I tap on snooze. I use my phone for all kinds of reminders, every 45 minutes to move a sprinkler and other such things.

I had my first Moderna shot this morning, and haven't noticed any reaction. It doesn't even hurt. I came home from the appointment and spent 2 or 3 hours removing the hydraulic lines from my tractor's front loader. It was a real chore, but as I was doing it, I realized it really needed to be done. It has more than a dozen hoses of different lengths, and they have been in place for decades. I have multiple bruises on my legs and arms and head. The worst bruise will be on my budget when I go to pay the bill for all new hoses and fittings. It wasn't a DIY project.

And I did all that right after getting the vaccine. My feet are hurting, but that's nothing new, nor is the tinnitus. No better, no worse.

Jim

@helennicola ...yes I will let you know... it's odd but I never ever have asked a dentist what they use for numbing agent until lately... I found a site where they explain "testing" of various meds: skin pin prick tests, injections etc., but they don't do them where I live and the way I feel I can't travel. but it's all very complicated... especially if the person being tested has other "allergies" and illnesses as many of us do... I just cant summon the strength or desire to get out of bed today.
One story I must tell you about: it was a Case History of man having very bad reaction to dental medication and he got furious at the dentist; ambulance called and the dentist even accompanied the man to hospital, all the while being berated by the patient. Long story short: turned out it wasn't the numbing agent but an allergic reaction from the man eating and having reaction to the shrimp he ate at lunch, and going to the dentist a few hours later!!! Unless Neurologist says "no" I am getting the tooth out Thursday as I cant afford to let it go and then be on antibiotics.... thanks for answering. June

June, what an interesting story, our bodies can be so strange! I hope you are feeling much better soon and wish you luck with the dentist visit, getting that tooth out should make you feel better in the long run. Teeth are another issue but I won’t go there!🙄😁 Helen

DNA
Oh its another bed day for me today sorting some papers and I came across my DNA TEST REPORTI had done a few years ago: my forgetfulness no longer surprises me.
So I was wondering if in this Group or another Group has anyone else had their DNA done as it relates to medications?
They cannot do all meds as too many but quite a few; then I read on another page my DNA code and some other things. It was a couple hundred dollars and just a swab on cheek at Pharmacy.
So; about 10 yrs ago Neurologist prescribed Amitriptyline ..I took one before bed an next morning was a basket case with cotton mouth, alone as husband at work and it was bad enough I didnt take any more. Just noticed on "Major gene-drug interaction" on this DNA Report, out of the five Psychiatry drugs they say I have "Major gene-drug interaction" to is Amitriptyline!!!
Thing is I had this test done and put it away, so no one has a copy, my old doctor, the emerge dept., no one: who would really have time to look at it?
So I think, and at the time thought, it was a good thing to find out whether I had major, moderate or minimal gene-drug interaction but doesn't help me when Report is sitting in a drawer at home!
Anyone else had this done? Was it useful? June

Thank you John. I will check on it.Take care & God bless. Tigreyes

Thank you for starting this thread. I experienced my first symptoms of neuropathy mainly at night back in January. I also felt tired and achy, did not think much of it. After about a week it went away and was most bothersome at night, to the point it was hard to sleep. I had an appointment with a neurologist but canceled as it went away. Yesterday I received my first dose of the Pfizer vaccine and almost within 10-15 minutes small tingling sensations appeared. Last night was similar to what I experienced in Jan, tough to sleep with tingling throughout the body but especially arms and hands, again very hard to sleep. I now believe that I had COVID in January. I am a teacher and we’ve been in the classroom since August so my level of exposure is high. I did not get tested as my symptoms didn’t seem to align with COVID. I am hoping this bout is again short lived. I appreciate all I have read from you folks. Any advice for managing uncomfortable feelings, especially at night, is much appreciated.