COVID vaccines and neuropathy
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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@lacy2 Hi Lacy. Yes, we had our first dose of Moderna January 24, 2021, and were scheduled to receive our second dose March 7, 2021. (6 week interval). That was cancelled March 3, and rescheduled for MAY 15. (16 week interval).
I feel like you do. They don't know enough about the side effects yet. I am going to wait & see how the J & J does bc it is only 1 shot.
I do realize I am a "guest" on this U.S.A. site... thank you.. but just checked Canada.ca site and they have section:
Vaccine safety, concerns and possible side effects.
So am not feeling up to checking it all today as quite lengthy, but did notice they have listed the Medicinal Ingredients and Non-Medicinals ingredients of Pfizer, Moderna, and AstraZeneca (not the Johnson and Johnson yet).
Not sure if this is of help to residents either here or in U.S.A. as am sure there are many similar sites: but what has me curious is....
Question: Is it possible that some recipients are "allergic"to or getting differnt side effects caused by the non-medicinal ingredients rather than the actual main medicinal ingredient , or am I over-thinking this? J.
@lacy2 Hello to you too, Fellow Canadian! I am on Vancouver Island in British Columbia. I believe all of Vancouver Island is now on the new 16-week protocol. I'm 85 years old with just about every disease on the Mayo Clinic Connect site, so I'm very fortunate not to have had any serious side effects from my first Moderna shot. Good luck to you with your shot!
@lacy2 You might be on an interesting point as to allergy. And it's important to remember that all of these Covid vaccines do NOT contain "live" Covid virus. Therefore, you can't get the Covid virus from the vaccine. The vaccine's job is to build up antibodies in our system so we can fight the actual virus if we're exposed to it. That being said, even the best vaccine is only 95% effective, so 5 out of every 100 people could still get the virus if exposed to it. Personally, I like those odds! Best, Laurie
Hi Helen @helennicola, I had not heard of the insoles. I do use insoles in my shoes mostly felt or ones for warmth in the Winter. The Naboso Neuro Insoles may be worth a shot but they do cost more than my shoes 🙂 The reviews on Amazon seem to be good. It would be interesting if someone has experience. https://www.amazon.com/Insoles-Stimulate-Improve-Neuropathy-Textured/dp/B07B4J41CB/
How is everyone who got a new onset or worsening of neuropathy from the vaccine doing now? I seem to be having some let up the last few days , but I am megadosing Alpha Lipoic acid, b12 and Vitalituses Palmitoylethanolamide . These have worked in the past for me also. I recommend for anyone with Neuropathy. I did report my case to VAERS. Let me know if any of you are feeling better after the neuropathy induced by the vaccine. If there are 15 or so of us here, there must be so many more suffering after the shot also. I am glad though to be protected from Covid, but holy cow there should be a warning for the neurological possiblities. Does anyone know anyone who didnt have any previous neuropathy that now has it from the shot? Regards, Joe
I have received both of my vaccines (Pfizer), and other than a sore arm, no other side effects -- have had neuropathy for over 20 years
@artist01and @lacy2, It finally sunk into my aging brain that your vaccines are spaced at sixteen weeks because there is not enough vaccine in Canada right now. I hope for more vaccine for all of you. My guess is the Moderna people are anxious to get the vaccine to as many as possible. Perhaps someone will record reactions and follow-up. There is so much to learn about all of the vaccines. May you stay well and hopeful as you wait. @joybringer1
@artist01 Love Vancouver Island! Love British Columbia! So lovely and interesting. A beautiful part of the continent.
FYI: I got the 1st Moderna shot in Jan at Mayo Clinic Florida. with no bad side effects. I was wonderfully surprised. The 2nd one was a completely different matter. After a couple of hours, I had 18 hours of a very ill response, with extreme fatigue, could barely move and every muscle and bone in my body ached or hurt. Headache, feet/legs/joints/back/spine/hands and fingers.....generally a pretty sick girl. I also had a fever. I finally felt so badly, I took an extra strength tylenol and went back to bed...I never do that unless I'm truly ill. I slept several hours and awoke sweating profusely, with a fever broken. I was fine after a day or so. I kept reminding myself what was happening in my body. I was making lots and lots of antibodies to the covid19 virus, so any temp side effects were certainly worth the discomfort. I was very unlikely to get covid19 now, so I was thankful for the shot and the side effects.
That may not be a medically correct assessment, but it makes sense to my non-medically trained brain. I have some good protection now I didn't have before the shot. Thank you, everyone who helped get that vaccine in my arm!
Wish you well on this vaccination journey. The whole thing is truly amazing.