COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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@athenalee

Unfortunately, I think the jury is still out. I mentioned previously that my neuropathy symptoms increased after the first Pfizer shot, but I decided to go ahead not knowing if it was truly the vaccine or just the normal development of symptoms for my body. Plus, I am fully in support of getting the vaccine to help our world get out of this pandemic. I had my second shot on Thursday. Normal minor flu like response, however, my neuropathy, plus joint and muscle pain, has increased again. I hope that some researchers are going to investigate these occurrences, as this second hike in symptoms is even worse than the first. Clearly not everyone is having this sort of reaction, but it seems there are enough of us that it warrants attention.

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I’ve had the same experience unfortunately. ☹️ Helen

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I have not heard or read about warning signs from neurologists about side effects from the covid vaccine. People with radiculopathy and neuropaty live with their condition well aware of any changes to the contrary. Okay, so the vaccine is great and keeps us alive but do all these negative and strange symptoms after the vaccine go away, do damage or what? My personal experience after the first shot was truly frightening. Should one just dismiss this and go ahead with the full procedure? It seems there is no guidance to these unknowns. I feel like a guinea pig.

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I agree. But it’s vital that anyone experiencing unusual symptoms file an event report with VAERS - https://vaers.hhs.gov/reportevent.html
If they hear from us they’ll have to investigate. I don’t look at myself as a guinea pig, as I chose to get the vaccine. And, I understand the urgency in developing the vaccine. Nonetheless, I do want answers as to the long term impact on my body from the vaccine.

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@busch

I have not heard or read about warning signs from neurologists about side effects from the covid vaccine. People with radiculopathy and neuropaty live with their condition well aware of any changes to the contrary. Okay, so the vaccine is great and keeps us alive but do all these negative and strange symptoms after the vaccine go away, do damage or what? My personal experience after the first shot was truly frightening. Should one just dismiss this and go ahead with the full procedure? It seems there is no guidance to these unknowns. I feel like a guinea pig.

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Thanks...many of us are "thirsty" for news about the vaccines including the good, the bad and the ugly. Where I live it has not yet been offered to us. My spouse is ready to have whichever is offered although he is on 13 meds; I am at this time saying no but may change my mind closer to decision-time.
What I picked up from your comment @busch was "truly frightening" reaction and am wondering if it should be noted on your family doctor file, or I think I saw a web site mentioned on here where you can register/report bad side effects? By your doing so it MAY help others in future, once they start analyzing reports.. . the only reason I would get it is to save my getting it and giving it to others. J.

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@joybringer1

@johnbishop, I welcomed the news about the side effects of your second Pfizer vaccine. We just received our first and I will not be afraid of that second dose. Extreme fatigue for a day is a small price to pay for protection. Let us hope everyone receives the vaccine. We need to stop this virus so we can resume our lives and enjoy each other's company! Thanks for posting this message of hope. Take care, @joybringer1

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@joybringer I'm an 85 year old Canadian, living in an Assisted Living seniors' residence. I've got GCA, Diabetes, Neuropathy, and several other autoimmune conditions. I received my first Moderna dose in January, along with all the other seniors in my building. Of all 50 of us, with varying degrees of illness, disability and age, NONE of us had a bad reaction, other than a sore arm for a day or so. We were scheduled to receive our second Covid shot on January 7th, but our provincial Covid expert, Dr. Bonnie Henry, advised the new protocol is to wait 16 weeks between the first and second dose. We're all somewhat troubled and disappointed by this decision, but feel we have to trust scientific evidence in this regard. My seniors' residence is one of the very few that have not had a single case of Covid, thanks to careful Executive Staff management of our building, plus our residents all adhering to the stringent Covid rules we all know so well. Just this week, we've been in Lockdown again, due to alarming new outbreaks in our city. We've had no visitors, no personal outings, no gatherings, for a year now, but we have each other, and that's good enough, so long as we're safe from Covid. It is what it is, folks. We'd rather have the side effects from the vaccine than die an awful death from that disease.
I hope you'll decide to get your Covid vaccinations. Warm regards, Laurie

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@artist01

@joybringer I'm an 85 year old Canadian, living in an Assisted Living seniors' residence. I've got GCA, Diabetes, Neuropathy, and several other autoimmune conditions. I received my first Moderna dose in January, along with all the other seniors in my building. Of all 50 of us, with varying degrees of illness, disability and age, NONE of us had a bad reaction, other than a sore arm for a day or so. We were scheduled to receive our second Covid shot on January 7th, but our provincial Covid expert, Dr. Bonnie Henry, advised the new protocol is to wait 16 weeks between the first and second dose. We're all somewhat troubled and disappointed by this decision, but feel we have to trust scientific evidence in this regard. My seniors' residence is one of the very few that have not had a single case of Covid, thanks to careful Executive Staff management of our building, plus our residents all adhering to the stringent Covid rules we all know so well. Just this week, we've been in Lockdown again, due to alarming new outbreaks in our city. We've had no visitors, no personal outings, no gatherings, for a year now, but we have each other, and that's good enough, so long as we're safe from Covid. It is what it is, folks. We'd rather have the side effects from the vaccine than die an awful death from that disease.
I hope you'll decide to get your Covid vaccinations. Warm regards, Laurie

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@artist01, Thank you for your concern. My husband and I received our first shots of Pfizer last week. Other than a sore arm (which I expected) and a little fatigue, we did fine. I am now concerned about you. The Moderna vaccine's second dose should be 28 days apart or up to six weeks apart. I cannot understand why your COVID expert says to wait 16 weeks. I wonder if anyone else has experienced this long wait and what reasons are given. I wish you well and hope you will receive your second dose earlier than expected. With all good wishes, @joybringer

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Hi artist01 Hi fellow Canadian - are you in assisted living here or USA? I am in Ontario.
From reading comments here and elsewhere, it does seem that some recipients of the vaccine are getting quite ill and some side effects have not left them after a few weeks, which must be very scary for them. However, have not necessarily given the name of the brand they received.

I am so happy to read that not one of fifty residents where you live had a very bad reaction... so am wondering which vaccine you and others were given (name) and also what brand the folks on here got who had bad reactions (someone had "truly frightening" reaction).
Am having another bed day so will do some Internet searching to find out if there is a comparison list of each of the four vaccines and if they show which ones are resulting in most "reactions" but doubt if they even have those numbers tabulated given that millions of people are getting the "jabs" and not everyone who had a "very bad" reaction is reporting it....seems to be "word of mouth" right now?
Thanks for the positive feedback ... stay safe, J.

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@johnbishop

I received my 2nd Pfizer COVID vaccine Feb 26th and the only side effect I had was extreme fatigue the following day. My wife had the same symptoms after getting her 2nd shot last Thursday.

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Hi John, I read about some insoles which are supposed to be excellent for those with numbness and balance issues and don’t know if you are familiar with: Naboso Neuro Insoles”? Helen

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@lacy2

Hi artist01 Hi fellow Canadian - are you in assisted living here or USA? I am in Ontario.
From reading comments here and elsewhere, it does seem that some recipients of the vaccine are getting quite ill and some side effects have not left them after a few weeks, which must be very scary for them. However, have not necessarily given the name of the brand they received.

I am so happy to read that not one of fifty residents where you live had a very bad reaction... so am wondering which vaccine you and others were given (name) and also what brand the folks on here got who had bad reactions (someone had "truly frightening" reaction).
Am having another bed day so will do some Internet searching to find out if there is a comparison list of each of the four vaccines and if they show which ones are resulting in most "reactions" but doubt if they even have those numbers tabulated given that millions of people are getting the "jabs" and not everyone who had a "very bad" reaction is reporting it....seems to be "word of mouth" right now?
Thanks for the positive feedback ... stay safe, J.

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....sorry @artist01 just noticed you said you had Moderna? Everyone had first injection in January and second one is to be ? J

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@joybringer1

@artist01, Thank you for your concern. My husband and I received our first shots of Pfizer last week. Other than a sore arm (which I expected) and a little fatigue, we did fine. I am now concerned about you. The Moderna vaccine's second dose should be 28 days apart or up to six weeks apart. I cannot understand why your COVID expert says to wait 16 weeks. I wonder if anyone else has experienced this long wait and what reasons are given. I wish you well and hope you will receive your second dose earlier than expected. With all good wishes, @joybringer

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@joybringer1 Thankyou for your concern! This 16-week protocol is a newly scientific finding, wherein the scientists have discovered that a longer wait between doses seems to be a workable solution. This has come about because certain areas in Canada are running short of the vaccine and the thought now is to spread the dose interval so that more doses will reach more population, thus creating the "herd immunity" every country is hoping for. The thought is that our one dose will give us a certain level of immunity and thus will tide us over until our second dose at the 16 week date. We hope they're right!
My doctors have advised me that because I have multiple serious health issues I would not survive Covid.
Also, we can't really circumvent the decision of the authorities and somehow get our second dose earlier than the new 16 week protocol, even though so many other seniors' residences in our province have already received two doses, albeit BEFORE this new decision of our Province of British Columbia came down. Again, I truly appreciate your concern. My best to you, Laurie

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